Sleep apnea cpap machine

christ125
christ125 Listener
edited July 2024 in Housing and independent living
Why is respiratory clinic just give you the machine and no help to manage day to day  sleep apneas I have cpap machine at night and under respiratory dept and  neurologist  but  so far no help with day ones any help gratefully appreciated  thank you  I can be gone anywhere from.few mins to at least 15 mins 

Comments

  • April2018mom
    April2018mom Championing
    Hello @christ125

    This leaflet should help demystify your new CPAP machine - 

    https://www.ouh.nhs.uk/patient-guide/leaflets/files/090428cpap.pdf
  • christ125
    christ125 Listener
    I need them.to sort out day ones I've been told just use it at night april2018mom
  • April2018mom
    April2018mom Championing
    Can you email the respiratory team @christ125? This is not right. They should have provided you with a leaflet detailing how to use it. If that doesn’t work, contact Patient Advocacy Services. 
  • christ125
    christ125 Listener
    I have seen them in person at me hospital for the 2-6 week review all the said when I explained about day ones was see neurologist at the hospital took a few weeks just to track down/get through to drs/neurologists secretary you have to go through the secretary 

  • christ125
    christ125 Listener
    April2018mom  I cant email them

  • April2018mom
    April2018mom Championing
    Contact the secretary then for the neurologist. This is completely unprofessional to me.
    Patient questions should be handled in a timely manner. 
  • christ125
    christ125 Listener
    I have just awaiting a call back aswell keep you posted also gotta see neurologist  on 8th of October  april2018mom
  • Chloe_Alumni
    Chloe_Alumni Championing
    edited October 2019
    Hi @christ125, I'm sorry you are still waiting for this equipment. Did they say when they would call back? I hope they are able to provide more guidance 8th October.
  • christ125
    christ125 Listener
    Thank you and I have the machine  it's not good when they dont listen to you at respiratory clinic 

  • airbusA346
    airbusA346 Contributor
    I have used CPAP since Oct 2015 and have been using a non-invasive ventilator since March 2018.

    What are you struggling with?
  • Chloe_Alumni
    Chloe_Alumni Championing
    Hi @christ125, I hope your appointment goes well next week. How are you getting on?

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