Sleep apnea cpap machine

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christ125
christ125 Online Community Member Posts: 9 Listener
edited July 2024 in Housing and independent living
Why is respiratory clinic just give you the machine and no help to manage day to day  sleep apneas I have cpap machine at night and under respiratory dept and  neurologist  but  so far no help with day ones any help gratefully appreciated  thank you  I can be gone anywhere from.few mins to at least 15 mins 

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  • April2018mom
    April2018mom Posts: 2,863 Championing
    Hello @christ125

    This leaflet should help demystify your new CPAP machine - 

    https://www.ouh.nhs.uk/patient-guide/leaflets/files/090428cpap.pdf
  • christ125
    christ125 Online Community Member Posts: 9 Listener
    I need them.to sort out day ones I've been told just use it at night april2018mom
  • April2018mom
    April2018mom Posts: 2,863 Championing
    Can you email the respiratory team @christ125? This is not right. They should have provided you with a leaflet detailing how to use it. If that doesn’t work, contact Patient Advocacy Services. 
  • christ125
    christ125 Online Community Member Posts: 9 Listener
    I have seen them in person at me hospital for the 2-6 week review all the said when I explained about day ones was see neurologist at the hospital took a few weeks just to track down/get through to drs/neurologists secretary you have to go through the secretary 

  • christ125
    christ125 Online Community Member Posts: 9 Listener
    April2018mom  I cant email them

  • April2018mom
    April2018mom Posts: 2,863 Championing
    Contact the secretary then for the neurologist. This is completely unprofessional to me.
    Patient questions should be handled in a timely manner. 
  • christ125
    christ125 Online Community Member Posts: 9 Listener
    I have just awaiting a call back aswell keep you posted also gotta see neurologist  on 8th of October  april2018mom
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    edited October 2019
    Hi @christ125, I'm sorry you are still waiting for this equipment. Did they say when they would call back? I hope they are able to provide more guidance 8th October.
  • christ125
    christ125 Online Community Member Posts: 9 Listener
    Thank you and I have the machine  it's not good when they dont listen to you at respiratory clinic 

  • airbusA346
    airbusA346 Scope Member Posts: 19 Contributor
    I have used CPAP since Oct 2015 and have been using a non-invasive ventilator since March 2018.

    What are you struggling with?
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @christ125, I hope your appointment goes well next week. How are you getting on?

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