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Permitted work and appeal

Hi everyone- this is my first post. I am on ESA and due to have an appeal - not linked with proving disability, but because the DWP suddenly decided that my previously allowed expenses were suddenly not allowed. It makes no sense and I have my accountant, local councillors, my MP and my doctors all agreeing that it is ridiculous (I am self employed and work around 3-4 hours per week as and when I can leave the house). Their unfair calculations pushes me over the permitted work limit of £131.50pw by £20 pw. I am contesting it, but my question is- what if I lose my appeal? I get severe disability premium, so I cannot apply for Universal Credit. I don't do enough hours to get working tax credit. And I can't get Job Seekers as I am so severely disabled. I get the top rates of PIP and was in the support group. You'd think they would have better things to do than to hound me (us). I do what is asked of me and then they change the rules without telling me. Anyway, if I do not succeed with the appeal, what do I do then? I have had no ESA since the start of August, and they won't give me any in the interim as they say I am earning more than £131.50 pw. What should I do? Also if I do not win, they may try and backdate it to April 2019 and make me pay back the ESA I received from April-August. I've also just been told that the appeal will take A YEAR to happen. I can't survive like this for a year when I can barely leave the house. My Dad died 2 days ago and I really don't think I can take much more. Thanks for any advice.
Replies
i really appreciate your advice on this! It’s all so complicated.
employed for 21 years. I had meetings at the job centre approving everything when and then when put in support group saw nobody so continued doing the same. Sent in my accounts every year. Then suddenly all this. I only ever did what I was told I could do. I found a ‘decision makers guide’ online plus the Citizens Advice sent me photocopies of pretty much the same. I spoke to a decision maker last week who also sent me to the legal docs website saying the same thing. Nowhere does it specify that the expenses I’ve always been allowed previously are now disallowed. So how am I supposed to know the rules if I am never told them?!
In my original post you'll see that I am not earning £155. That's what ESA say I am earning, based on their ridiculous non-allowance of my standard self employed expenses. I earn much less than that. It all depends if you are allowing my expenses as to what my income actually is.