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Hi, my name is Michelle

I've been struggling for 3 yrs with MALS along with Achalasia, esophageal dysmotility and cvs all are Invisable illnesses unless your at my house watching me vomit 50 times a day. Gone from the strong pma outgoing bubbly me to someone I don't recognise let alone like. I do agree with alot of the posts I've read. These Invisable illnesses just cause more invisible illnesses depression, anxiety and worst of all you can be in a crowded room and still feel alone that's the hardest thing to get people around you to understand. I can't get motivated just because you say so it hurt and I'm in pain and I just don't want to don't cut it so you become alone because you can't just pull yourself together 😣😣😣

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Mlatchford    Pleased to meet you.

    Thank you for joining and sharing.

    Sorry to hear what you are experiencing.

    I am one of the team of community champions on the forum, we guide, advise members of our community.

    Please can I suggest the following links may be useful to you.

    Give you for your condition and illness this organisation. Lots of support and advice, information.

    https://www.gutscharity.org.uk.

    For you mental health these three worth looking at.

    I used them myself.

    https://www.richmondfellowship.org.uk.
    https://www.mind.org.uk.
    https://www.rethink.org.

    Floating support or an outreach worker. Also help with benefits, advice, wellbeing. Do take clientele with other disabilities. As well as mental health.

    Might not be in all areas.

    Please can I add you not alone we are here to support you. Please ask any questions. Have a look round our website.

    We have compassion, empathy and sensitivity. Are here anytime to listen to.

    Give you reassurance and self esteem , confidence.

    Please take care.

    Please I hope you enjoy your time with us.


    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    Hi @Mlatchford - Welcome from me too, 'tho I'm sorry to read about all your medical issues. It's good to read that you have been looking around at other posts; please join in any that you like. I don't know if you've come across this site, but sending just in case it's also helpful: https://www.achalasia-action.org

  • Connie00Connie00 Member Posts: 255 Pioneering

    Hello @Mlatchford  

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. Thank you for reaching out to us,  I am so sorry to hear you are having such a rough time, it can't be fun, and restricts what you can & can't do, I cant offer you any further advise than my two colleagues

    have already given you please don't give up, that bubbly person still exists, reach down low and pull her to the surface. she is waiting to be saved and only you can do it. don't lose her altogether. 

    We are always here to lend support, help, and advise where we can,

    If we can be of any assistance to you please don’t hesitate to contact us


    @Connie00 B)

  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,924

    Scope community team

    It sounds like you've got a lot going on @Mlatchford. Is there anything we can do to help?
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
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