Hi, my name is Michelle

Mlatchford

I've been struggling for 3 yrs with MALS along with Achalasia, esophageal dysmotility and cvs all are Invisable illnesses unless your at my house watching me vomit 50 times a day. Gone from the strong pma outgoing bubbly me to someone I don't recognise let alone like. I do agree with alot of the posts I've read. These Invisable illnesses just cause more invisible illnesses depression, anxiety and worst of all you can be in a crowded room and still feel alone that's the hardest thing to get people around you to understand. I can't get motivated just because you say so it hurt and I'm in pain and I just don't want to don't cut it so you become alone because you can't just pull yourself together ???

thespiceman

Hello @Mlatchford    Pleased to meet you.

Thank you for joining and sharing.

Sorry to hear what you are experiencing.

I am one of the team of community champions on the forum, we guide, advise members of our community.

Please can I suggest the following links may be useful to you.

Give you for your condition and illness this organisation. Lots of support and advice, information.

https://www.gutscharity.org.uk.

For you mental health these three worth looking at.

I used them myself.

https://www.richmondfellowship.org.uk.
https://www.mind.org.uk.
https://www.rethink.org.

Floating support or an outreach worker. Also help with benefits, advice, wellbeing. Do take clientele with other disabilities. As well as mental health.

Might not be in all areas.

Please can I add you not alone we are here to support you. Please ask any questions. Have a look round our website.

We have compassion, empathy and sensitivity. Are here anytime to listen to.

Give you reassurance and self esteem , confidence.

Please take care.

Please I hope you enjoy your time with us.


@thespiceman

chiarieds

Hi @Mlatchford - Welcome from me too, 'tho I'm sorry to read about all your medical issues. It's good to read that you have been looking around at other posts; please join in any that you like. I don't know if you've come across this site, but sending just in case it's also helpful: https://www.achalasia-action.org

Connie00

Adrian_Scope

It sounds like you've got a lot going on @Mlatchford. Is there anything we can do to help?