If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Hi, my name is jeanie65!

Options
jeanie65
jeanie65 Community member Posts: 1 Listener
My rheumatologist believes I have PG. I go to a dermatologist on Fri. Hope to find out for sure if this is what I have. I have done some research and it seems to be right. The pain is like fireworks in my leg.

Comments

  • chiarieds
    chiarieds Community member Posts: 16,195 Disability Gamechanger
    Options
    Hi @jeanie65 - Welcome to the community. I'm sorry to read about the problems you have, but it's also good to get your own research confirmed, something I also did about my genetic disorder. Please do have a look around the rest of the community; you can see other sections if you use the 'All groups' link on the right. Please let us all know how you get on with your dermatology referral.
  • Adrian_Scope
    Adrian_Scope Posts: 11,393 Scope online community team
    Options
    Hi @jeanie65 and welcome to the community. I hope you'll find out more on Friday and please let us know how you get on. :smile:
    Community Manager
    Scope
  • Ails
    Ails Community member Posts: 2,256 Disability Gamechanger
    Options
    Hi @jeanie65 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I'm sorry to hear about your health struggles as the pain doesn't sound nice at all.  I hope that your Dermatologist can throw more light on what is going on, but it sounds as though you have done good research in advance.  Good luck for your appointment!  It will be interesting to hear how you have got on anyway and I hope the pain eases soon.  If there is anything we can help/support you with then please just let us know.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.