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Hi, my name is Glenda

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gdocmacoo
gdocmacoo Community member Posts: 3 Listener
Just joined - I have Crohn’s disease and inflammatory joint disease. I have had Crohns since I was 12 years old and have been in and out of hospital for more than 30 years. The inflammation in my joints is a result of my Crohns and started 3 years ago. Luckily I’m in remission now and lead as active a life as I can but I’m immunosuppressed due to the medication I’m on and I have toilet urgency which can lead to embarrassing accidents. 

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  • chiarieds
    chiarieds Community member Posts: 16,176 Disability Gamechanger
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    Hi @gdocmacoo - Welcome to this supportive & friendly community, & thank you for joining us all. There are others who have posted that have Crohn's; it sounds a sadly debilitating disorder, but pleased to read you're in remission just now.
    Thank you for sharing & you'll find others will come to welcome you too; people here share & care for each other, so it's a great place to chat. I have osteoarthrosis in most of my joints due to a genetic disorder (Ehlers-Danlos Syndrome).
  • gdocmacoo
    gdocmacoo Community member Posts: 3 Listener
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    Aww thanks! Looking forward to hearing about everyone’s experiences. It’s good to feel supported - sometimes you can feel like the only one - especially when your disability is invisible.
  • thespiceman
    thespiceman Community member Posts: 6,379 Disability Gamechanger
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    Hello @gdocmacoo   pleased to meet you.

    Thank you for joining and sharing.

    Congratulations to you with your in remission.

    I am one of the team of community champions. We guide, advise, help members of our community.

    Please have a look around our website.

    Please have a look at these links for more support and anything else you might wish to know.

    Might be useful.

    https://www.crohnsandcolitis.org.uk.

    Helpline 0300 222 5700

    https://www.bladderandbowel.org.

    Helpline 01926 357 220

    Please if you have any questions please ask your not alone we are here to support you.

    Please I hope you enjoy your time with the community.

    Please take care.

    @thespiceman


    Community Champion
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  • Adrian_Scope
    Adrian_Scope Posts: 11,393 Scope online community team
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    Welcome @gdocmacoo. :smile:
    Community Manager
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  • gdocmacoo
    gdocmacoo Community member Posts: 3 Listener
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    Thank you everyone!
  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
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    Welcome to the community @gdocmacoo. :)
    Scope

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