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Hi, my name is ceebee58!

ceebee58ceebee58 Member Posts: 1 Listener
my problems are as a result of a car crash that snapped 2discd in my neck.i have had a disceptomy and fusion cv3 and CV 4.i have now been diagnosed with cervical spondylosis down my spine and arthritis at my knees.im now on that much pain relief I am asleep most of the time


Replies

  • chiariedschiarieds Community Co-Production Group Posts: 8,025 Disability Gamechanger
    edited December 2019
    Hi @ceebee58 - Welcome to the community & thank you for joining. I'm sorry to read about your accident & subsequent problems. I have a genetic disorder which has resulted in generalised osteoarthrosis due to hypermobile joints, & I also have neurological problems which mean I have chronic pain. I have been where you are, my GP increasing my pain meds, until I was asleep half the day.
    What helped me, was looking at different approaches to manage my pain such as gentle exercise, as I found I was stiffening up with not moving much, relaxation exercises, & distraction, etc.
    I'm still in pain the moment I'm upright, but managing it, & find being able to achieve small goals some days gives me a small sense of achievement. My current GP also increased a med I take which doesn't have a sedating effect.
    Pain is very personal, & a difficult thing to manage, & sometimes pain meds become less effective if used long-term. So I'm just mentioning what helped me, in case it's of some use to you, now or in the future.
    I see you have some pets. Some of us have shared our photos in the 'Coffee lounge' section of this forum. There are a couple of photos of my kitten, Shadow there. If you would like to share some photos you can do so with the following link: https://community.scope.org.uk/discussion/66308/hi-everyone-lets-see-a-picture-of-your-fur-babies-️or-pets#latest



  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @ceebee58   Pleased to meet you.

    Thank you for joining and sharing.

    Sorry to hear this, you met my wonderful friend  @chiarieds who has given you a lot of warm welcomes and lots of support.

    I am one of the community champions. We guide and advise, support members.

    Please if I can suggest the following organisations might be useful for additional support, information.

    We have plenty of advice, information on this website, please have a look around.

    As a part of my role I do understand have compassion, empathy and sensitivity.

    Do give much help as I can, other organisations and anything we can do to reassure you as a community member. Please ask any questions, contact any time.

    We are a friendly community.

    https://www.arthritisaction.org.uk.

    Helpline 020 3781 7120

    https://www.spinal.co.uk.

    Helpline 0808 801 0327

    https://www.awaywithpain.co.uk.

    This is an organisation deals with chronic pain lots of useful guidance, help and anything you might need to know.

    Also included this organisation if finding difficulty getting any care or assistance.

    Gives local care services near to you.

    https://www.carenearme.co.uk.

    Please if I can help with anything further or wish to have a chat anytime here.

    Please take care.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @ceebee58

    Good Morning & Merry Christmas 🤶 🎅🎅🤶

    I am one of the Community Champions here at Scope. 

    I have also got "Chronic Pain 24/7  down my right side following more brain surgery. 

    Here is some info below for you in regards to 'Chronic Pain'


    https://www.nhs.uk/live-well/healthy-body/10-ways-to-ease-pain/

    @steve51




  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,943

    Scope community team

    Welcome @ceebee58. I hope all the resources provided will be of use, but please let us know if there's anything we can do to support you. :smile:
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
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