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lottie2007lottie2007 Member Posts: 40 Connected
Hi I’m new to your group and abut worried about using it. I suffer with anxiety which can rule my life on a bad day is there any one else in the group with the same thing. 

Replies

  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @lottie2007

    Welcome to our online community/family.

    I’m one off a number off Community Champion’s here at Scope.

    Please don’t worry about getting around I will be more than happy in helping you.

    Yes we have got some members in similar situations as yourself.

    Please please let me know if there’s anything that I can help you with ????

    @steve51
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Hi @lottie2007, lots of our members have mentioned having anxiety. We have a really great and supportive community here and we're happy to have you with us. 
    Do you get much help with your anxiety at all?
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • lottie2007lottie2007 Member Posts: 40 Connected
    Hi no not really my family are brilliant and support me the best they can. But am on my own all day and can’t go out on my own as lost all my confidence doctors have been good but don’t get to see the same doctor so you get one that will listen and then the ones who say oh well you will get over it.  Can u please definitely tell this message isn’t posted on face book were any body can see it. Which doesn’t help thank you for your message 
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Hi @lottie2007. I'm sorry to hear that. It can be difficult to get consistency of care with that sort of system. I have the same problem at my GP surgery.
    In answer to your question, this is a public forum, but we don't share any posts on Facebook without the consent of the member.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • lottie2007lottie2007 Member Posts: 40 Connected
    It would be nice to find a group that meets up for coffee and a chat were you could go and feel comfy knowing people no how you feel 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @lottie2007

    If you let me know what area do you live in then I can have a look for you if that will be helpful????

    @steve51
  • lottie2007lottie2007 Member Posts: 40 Connected
    edited January 2020
    I live in Hampshire

    [edited by moderator]
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Hi @lottie2007. I've removed some of the details from your post as we don't allow the disclosure of personal information here to protect our members.

    Have you tried Havant and East Hants Mind?
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • lottie2007lottie2007 Member Posts: 40 Connected
    I will look into it thank you 
  • chiariedschiarieds Community Co-Production Group Posts: 8,102 Disability Gamechanger
    Hi @lottie2007 - Has the link Adrian sent been helpful?
  • chiariedschiarieds Community Co-Production Group Posts: 8,102 Disability Gamechanger
    Hi again @lottie2007 - In your first post you wondered if anyone else here suffered anxiety. I'm going to ask my friend @thespiceman to assist as he has a great understanding of this problem. Just to reassure you, he's this community's gentleman.
  • lottie2007lottie2007 Member Posts: 40 Connected
  • chiariedschiarieds Community Co-Production Group Posts: 8,102 Disability Gamechanger
    You're most welcome.
    thespiceman will definitely help, as he's suffered from anxiety.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @lottie2007   Pleased to meet you.

    I am one of the community champions on the forum.

    Thank you to my lovely friend @chiarieds for including me in this post.

    I would like to explain a little about my self.

    I had anxiety and depression plus have a disability, addiction history.

    Had this a long time, clean sorted from the addiction, but mental health remains.

    I would like to suggest the following.

    These are mental health charities.

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    Last one advocate charity helps you.  Speak on your behalf if having problems with medical professionals.

    All offer floating support, advice, guidance with your issues.

    Information, education, knowledge in a support group setting.

    Looking at everything from medication, sleep and much more health issues.

    Diet, nutrition an important one, to discuss.  Certain foods we consume cause problems make the condition worse.

    To avoid Alcohol a common one, please I can advise on any of that. Have extensive knowledge of addiction. If you are aware having problems. Caffeine, found in tea, coffee, cola, chocolate.  

    When we get anxious we reach for the caffeine thinking calm us down. Actual fact increases the anxiety symptoms.

    Worse alcohol aids even worse symptoms and can lead to depression, also the sugar feel hit needed. A common one as well.

    The need for sweet things cakes, biscuits, and so on.

    Having a well balanced diet. Plenty of Fruit, Vegetables. Lean Meat and foods like Nuts, Eggs.  Whole grains Bread, Pasta, Rice 

    Sleeping another common problem.

    Insomnia  is a serious problem please always consult your GP.

    About anything .  Your suffering from.  Medication is the answer and certain ones do have side effects. Please always read the packet, leaflet and be aware at all times.

    They might not be in all areas any of the charities sorry to say to you

    You can self refer or speak to your GP.

    One final point they do look at your benefit situation, do a review offer also anything you need or support with any thing related.

    Employment difficulties supported assistance and give the opportunities to cope.

    All charities use care plans, aims, goals and coping methods and strategies.

    Anxiety is a difficult not easy to live mental health condition but by learning, educating your self being aware you can do this.

    Please contact me any questions you wish to know or anything I can help with.

    Please take care.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • lottie2007lottie2007 Member Posts: 40 Connected
    Good morning thank you for your help and advice I will look into the charity’s I have been very alone and didn’t realise there is so much  help out there 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited January 2020
    Hello @lottie2007     Pleasure to help, please ask me anything, wish you well.

    You made one good major step in over coming any issues.

    You are already doing this by contacting the SCOPE forum and hopefully any of the charities mentioned.

    I am on here daily and please your not alone, we are here to help be a friend.

    I am happy to listen anytime have a chat.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • lottie2007lottie2007 Member Posts: 40 Connected
    Morning I have contacted rethink and waiting for a call back. I have been keeping a diary about when my attacks happen and after reading your list I found out it’s when I eat chocolate and drink wine they seem worse so will be cutting all that out will be buying more fruit. The next thing is to get myself out the house but one day at a time. Then sort work out thank you so much for listening 
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    edited January 2020
    Hi I am new to the group 

    I have anxiety, chronic pain and  disabilities.

    I have been in chronic pain for 6 years and it’s just unbearable sometimes, I am on strong pain relief which takes some of the pain away but not much. 

    I have panic attacks which has happened recently never had them before now I seem to get them at least once a day, I’m waiting to have cognitive behavioural therapy sessions and hope that sorts it out. 

    I have a condition which affects my height. 

    I also have a learning disability too. 


  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @lottie2007! I'm so glad you have been able to find support. It's a really good idea to keep a diary and I hope that will allow you to see patterns. You are very welcome here. :)

    Hi @avakarlsson and a warm welcome to the community! Thank you for sharing this with us. I hope the CBT helps to manage your panic attacks. Please do have a look around and get involved when you can!
    Community Partner
    Scope

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  • avakarlssonavakarlsson Member Posts: 332 Courageous
    Hi Chloe

    Thank you for the welcome message, yes I hope the CBT sessions help and sort it out, hopefully I won’t have to wait too long for an appointment.  
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    I’ve got a part time job but recently I haven’t been able to go to work due to the chronic pain 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @lottie2007   Pleasure to help you anytime.

    Another organisation is the Community Health Unit of your local council who run a well being service.

    Looking at one to one support, advice and guidance all diet, nutrition.

    Found used them got my foodie qualifications through them, learnt educate my self.

    Please can I add well done to you for cutting out alcohol and  most important of all.

    If you know how much your consuming please speak to your GP. I would always discuss this with a Doctor be honest at all times..

    You may have to be referred to specialist help. 

    Just a thought. Any sudden with drawl of anything such as alcohol if you think drink a lot, must be monitored and safely.

    The problem is no one does, need to be taken in consideration.

    Alcoholism is many facets and many types you may not drink in your opinion a lot but it depends how much.

    Binge drinking a problem, may not for example drink every day but may have a few glasses or more on a certain days .Which involves drinking a whole bottle or more.

    That is alcoholism.

    With alcoholism if you feel the following applies to you need to seek the care and the facilities of rehab.

    You become a out patient all confidential, private.

    The following list.

    Understand you desire for a drink every day to cope with your issues or problems.

    Drinking after work or any activity.

    The need constantly to continue drinking even though been told to stop.

    Memory problems, issues remembering faces, people, friends.

    Hangovers and related symptoms of any alcohol misuse.

    Including forgetting to eat or sleep. Stomach bowel problems, headaches.

    Losing weight. Eating junk food and missing meals lack of appetite. Replacing with alcohol.

    Hiding it from friends, family and getting into debt, the sudden guilty, emotions depressions after any drinking sessions.

    Lying, deceiving family friends making excuses.  Using stealing, selling, pawning possessions to have a drink.

    Trust me seen that many times, usually not own money 

    Being violent and abusive when drinking using alcohol as a way to be confidence and give yourself self esteem.

    Units of alcohol vary from drink to drink.

    I do not ever wish to alarm you but this is something you may have to address speak to AA.

    https://www.alcoholics-anonymous.org.uk.

    Helpline 0800 9177 650

    Please if I can add this is a common problem with any one who has anxiety your not alone.

    I suffered thirty years being an alcoholic before realising was one.

    Have wealth of lots of experience of dealing with community members going through this right now.

    Be honest and open and you will be OK.

    Had alcoholic amnesia which means drinking to forget.

    Please contact me if you wish to ask any questions. 

    Only too glad to be supportive, offer compassion and empathy.

    Please take care.


    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    It changes everything when you have pain and you can’t do much 
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    And having panic attacks too 
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    Hi, when you don’t want to be on pain relief but you have to as the pain is chronic, hopefully soon I will have some relief 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @avakarlsson   Please can add  I spoke to you this afternoon if you are having problems with pain, also mental health.

    Please have a look at these organisations .

    Mental health charities can help the panic attacks, anxiety using coping methods and strategies.

    Offer floating support and wellbeing, health and benefits advice guidance. Information and any thing else relevant, look at your pain and anything around this.

    How can they help.?

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    Might not be in all areas.

    Please if you wish ever to ask me anything have a lot of wealth of knowledge, expertise on mental health and addiction plus diet , nutritional knowledge.

    Pleasure to meet you.

    Please take care.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    I’ve been referred to talking therapies who are sorting my panic attacks out

    Thank you  
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited January 2020
    Hello  @avakarlsson   Thank you that is great good to hear.

    The charities links provided .

    This is using strategies, coping methods ways and means to deal with panic attacks, anxiety.

    Totally different being with groups of people like you and also using the education, knowledge of trained staff to assist you with any problems you may have.

    Mental health any health issues the more you learn and educate yourself the better you be able to cope and deal with anything.

    I always say that is your decision, know myself with out these charities have made look at everything changed my life.

    Reason can advise you be supportive.

    Using the knowledge and expertise plus always seeking out new ways and methods to advise members.

    One other the pain you have they may some do have in house advisors a large charity like Richmond Fellowship has many branches, advisor, staff and anything related to other health conditions.

    Often signposting to any of the in house teams.

    I found when I applied even having addiction and clean offered me some support guidance on anything I need.

    Just very useful.

    Please hope that may allay any fears, insecurities if you have them.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • avakarlssonavakarlsson Member Posts: 332 Courageous
    Thank you, I will see what my pain management doctor says
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