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Hi, my name is maria
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mariajayne16
Community member Posts: 1 Listener
I have a multitude of long term illness, all with lots of side effects, each one with no cure ...yet.
Postural Orthostatic Tachycardia syndrome
Gastroparesis
Idiopathic intracranial hypertension
Joint hypermobility syndrome
Fibromyalgia
Chronic fatigue syndrome/ME
Postural Orthostatic Tachycardia syndrome
Gastroparesis
Idiopathic intracranial hypertension
Joint hypermobility syndrome
Fibromyalgia
Chronic fatigue syndrome/ME
Comments
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Hi @mariajayne16 - Welcome to the community & thank you for joining. I'm a little similar in that I have the hypermobile type of Ehlers-Danlos Syndrome + neuropathic pain (from Complex Chiari I Malformation) & orthostatic intolerance at least, or PoTS. If you find the cure, please share it!Anyway, it's good to 'meet' you, & I hope you enjoy being part of this community. Please have a look around, & join in any discussions. If you have any questions, do say.
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Hello @mariajayne16 Pleased to meet you welcome.
Thank you for joining and sharing.
I am one of the team of community champions. We guide, advise, help members of our community.
Please have a look around our website, we are friendly.
Please can I advise additional support, information the following may be of interest to you.
Organisations, connected to your illness, conditions.
https://www.potsuk.org
https://www.iih.org.uk.
https://www.fmauk.org
https://www.meassociation.org.uk.
Please if I can help with anything further please get in touch.
Happy to be supportive, offer compassion and empathy.
Please enjoy your time with the community any questions please ask.
Please take care.
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
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