Hi, my name is maria — Scope | Disability forum

Hi, my name is maria

I have a multitude of long term illness, all with lots of side effects, each one with no cure ...yet. 
Postural Orthostatic Tachycardia syndrome 
Idiopathic intracranial hypertension 
Joint hypermobility syndrome 
Chronic fatigue syndrome/ME


  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,454 Disability Gamechanger
    Hi @mariajayne16 - Welcome to the community & thank you for joining. I'm a little similar in that I have the hypermobile type of Ehlers-Danlos Syndrome + neuropathic pain (from Complex Chiari I Malformation) & orthostatic intolerance at least, or PoTS. :( If you find the cure, please share it!
    Anyway, it's good to 'meet' you, & I hope you enjoy being part of this community. :) Please have a look around, & join in any discussions. If you have any questions, do say.
  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    edited January 2020
    Hello @mariajayne16   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions. We guide, advise, help members of our community.

    Please have a look around our website, we are friendly.

    Please can I advise additional support, information the following may be of interest to you.

    Organisations, connected to your illness, conditions.





    Please if I can help with anything further please get in touch.

    Happy to be supportive, offer compassion and empathy.

    Please enjoy your time with the community any questions please ask.

    Please take care.


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,555 Disability Gamechanger
    Welcome to the community @mariajayne16! :)