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PIP Help

Hi all, I have been in receipt of standard rate PIP for both components for about a year now for a plethora of physical and mental health issues spanning 5 years which severely affect my life, as I'm sure many of you are familiar with!
Have over the past months been experiencing really debilitating attacks almost every other day which have led to me being pretty well stuck at home, unable to eat sleep or even move very far without fearing bringing on another attack. Am not sure if it's panic disorder as I have a congenital heart defect and POTS which complicate things, under medical investigation but no answers yet.
I was hoping to ride this out, but have got to a stage of phoning ambulances going to A&E every few days in fear of my heart failing and am jeopardizing general health, work, relationships etc.
Wondering if anyone has had to report change of circumstances re deteriorating condition, and how people found this process? I feel I might be eligible to recieve higher daily living rate at this stage with all the trouble these attacks are causing me day to day.
Thanks everyone for reading, and if any of the above is troubling you as well don't hesitate to get in touch and comment, we could all use a listening ear! X
Have over the past months been experiencing really debilitating attacks almost every other day which have led to me being pretty well stuck at home, unable to eat sleep or even move very far without fearing bringing on another attack. Am not sure if it's panic disorder as I have a congenital heart defect and POTS which complicate things, under medical investigation but no answers yet.
I was hoping to ride this out, but have got to a stage of phoning ambulances going to A&E every few days in fear of my heart failing and am jeopardizing general health, work, relationships etc.
Wondering if anyone has had to report change of circumstances re deteriorating condition, and how people found this process? I feel I might be eligible to recieve higher daily living rate at this stage with all the trouble these attacks are causing me day to day.
Thanks everyone for reading, and if any of the above is troubling you as well don't hesitate to get in touch and comment, we could all use a listening ear! X
Replies
I have used http://www.pip-assessment.support as fairly/unbiasedly as I'm able, which lands me on the higher bracket.
I know the system is how it is, but my conditions and daily living aside from these occurances in the last 6 months or so have remained the same/become worse with regards to pip descriptors; it does not make sense to me that an award should be taken away unless the PIP interviewers opinions and decisions are wildly inconsistent - or perhaps within the last year PIP parameters have changed?
Either way the government website asks you to report changes of circumstances, so that's what I'll do. Fingers crossed I suppose.
Thanks.
Edit just seen you have no more medical evidence despite investigations, I dont think they would count going to A&E as new evidence.
Have also been referred to therapy as a consequence of these changes.
Don't know if you could clarify what 'new evidence' means with regards to PIP, as I thought the deciding factors are supposed to be based on how daily living is affected, not on diagnosis/investigations? I have kept as many notes/records/diaries as possible despite no present diagnosis.
If new evidence means a diagnosis I would be unlikely to have this by my PIP review date anyway, nevermind a change of circumstances claim
I do hear what you're saying though, and it's utterly awful that people can lose their claims even after getting worse. I hope it's a rare occurance as you suggest.
Thank you for replying
@hannahP... you are correct..as Poppy has said it's nothing to do with diagnosis...
Having read a lot of the posts I think there can be some confusion about 'evidence'.
Some people seem to think that attaching as many pages of medical stuff as you can is a good idea. I didn't personally because, unless the medic is saying something about how you are unable to do day to day tasks, i didn't consider it any help...
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