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How's everyone holding up
Firefly123
Member Posts: 525 Pioneering
Hi how's everyone holding up. I'm finding the days seem to be blending together. My young adults are out of sorts as so many changes to their routines. Just taking each day as it comes x
Meant to post this in the coffee lounge.
Meant to post this in the coffee lounge.
Tagged:
Replies
For me routine has been key. How are you doing today?
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I think it's going to last a long. While yet so just need to get through how we can x
My family’s medical appointments have all been cancelled. One child was booked for a speaking valve evaluation appointment to see if it would work or not. She was scheduled for her routine vaccinations and another assessment appointment with a local zero to nineteen team for my area. I had also pushed for a Portage initial appointment for her as I know that she will need lots of intervention and therapy. Cancelled.
And DS had a spina bifida clinic day appointment with his care team too, also cancelled. This is the very important one when I meet a bunch of doctors and consultants and discuss the future as well.
We also typically make some long term plans and then they order any essential equipment on his behalf. His urologist also does a urodynamic test to see what his bladder is doing. I also see the hospital therapists and we carefully evaluate his overall development and progress. That annual appointment was tomorrow. I had some other non routine appointments in addition. Again I was told they had postponed them or cancelled altogether.
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On my own every day so days do blur means some humorous times.
Is this Saturday or Sunday have to check diary.
Had when a car went out thought roads very quiet and shopping bought a lot.
Came home switched on TV where's my programme realised was Sunday . Bought the same shopping tins and produce as well.
Turned up for appointment early and a day early.
Learnt this so use diary have no senior moments.
Ideas for you all.
Make and create food sauces and for freezer. Together helps makes things such as Beef burgers, Meatballs and do an assembly line.
Other ones are Pancakes the older children young adults do cooking classes minor skills all young adults should know basic cooking lessons and skills.
How to make simple sauces offer to supervise all times say make us evening meal or lunch does help.
Can help ask me happy to do so, does help self esteem . Recipes and anything like that.
I used to have Italian friends all the children making Meatballs and sauces young sort of age learning to bake making simple Pastas and meals.
I used to have friends children to care for while Mothers at work did a lot of routines and plans to keep them occupied.
Do a rota of routines task such as house work chores and offer rewards incentives.
Puzzles books Arrow words Word Searches help.
Music therapy dancing and keeping fit does not have to be hard, stretches and Tai Chi help me mornings.
Crafts and art classes lots of time together use board games or learn teach them chess.
Lots of my time being here. Using forum helps.
Always here to chat talk how can I help many times a day a week, so please if I can be a shoulder please do.
To reassure you not alone many members of our communities and families suffering.
We need to be patient tolerant and kind to each other.
Any problems happy to be supportive.
Please take care, safe and keep in touch.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
I managed to get a few pancake mixes ect and one is addicted to cookies 🥠 has a real problem if he doesn't have any so we made some..
Now only if I could make chicken nuggets like mcdonald's.
Did not know Chicken had nuggets?
Looking for take out easy meals children adults have lots , contact me lot healthily easy freezer friendly and make them together.
Chicken Nuggets this one do .
For you a recipe little introduction to mild spices.
Need Chicken Breast diced used 500g pack.
Natural Yoghurt 150 ml. or Greek.
Breadcrumbs 100g
Tikka Masala paste 3tbsp
Onion Garlic Powder.
METHOD
Chicken to a bowl with curry paste and yoghurts coat cover two hours plus fridge.
Blitz up bread food processor any to make breadcrumb season Onion Garlic Powder. To taste.
Oven 200 plus heat up. Cover Chicken in to Bread Crumbs coat on to baking sheet oiled .
Cooked till crispy.
For twenty minutes. adjust timings.
@thespiceman
.
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
I hope you are keeping well x
Not me the members like yourself come first I always thoughts thinking of those in my heart and prayers.
I live on my own used to it but do have mental health with any of it and learnt to adapt.
Those who of our community struggling may be having symptoms of anxiety so please if you think you may need some advice.
Contact me.
Happy to offer advice, help and information.
One other being with any families strains and stress can occur so please ask me ways to deal or cope with.
We all in this together and as a community we need to be patient tolerant and kind to each other.
Here for recipes well being and health friendly advice chat talk ask me anything .
Part of our role as Community Champion. Pleasure to help tag me in.
Please take care and safe .
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
Some days can be more stressful than others. We just have to get though it as best we can ☺ x
Sorry you've been struggling this week. I've been really tired so have been watching films on an evening and relaxing. How are you doing @April2018mom?
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@Chloe_Scope it is rather tiring doing not a lot the days just blend together.
Stay safe ladies x
@April2018mom I don't think they will while our death toll is so high. I would love to get out the house some day soon. Its definitely a very trying time for us all... Half the time I don't even know what day it is ☺
Scope community team
@Deb74 are you managing okay? Sorry to hear about your flare up.
Scope
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We all just have to ride it out as best we can.
Scope community team
Scope
Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
Here is a thread about managing pain during lockdown which you might find helpful.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
Battling poor health, family and everything else.
I myself have been have a rough few days ended up in A &E with chest pain and breathlessness.
I am home now. My neurological symptoms are up and down and I have been in bed for 2 days with pain and numbness.
My children however have taken over (eldest 2) to allow me to rest bless them. The little ones come and lay with me and we talk.
Being in bed not able to move and being housebound is normal for me.
The little children are very worried about covid 19 and I have reassured them.
I think the children have been great in all this. 👏