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Hi, my name is LuckyTony!

LuckyTonyLuckyTony Member Posts: 10 Listener
Excuse the username, all the other Tony alternatives were taken. Lucky is kinda accurate.. I didn’t say “Good luck” did I? Just joined to have someone to talk(txt) to when it all gets too much.. 

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,747 Disability Gamechanger
    Welcome to the community @LuckyTony how are you doing today? :)
    Disability Gamechanger - 2019
  • LuckyTonyLuckyTony Member Posts: 10 Listener
    Not so good to be honest, dealing with back, shoulder pain, IBS and now just for fun tooth pain! Seems like I’ve been in some sort of pain for years and I’m starting to loose the ability to deal.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @LuckyTony

    Good Afternoon & Welcome to our online community/family.

    I am one of the Community Champion’s here at Scope.

    Yes I have had chronic pain down my right side since 2005
    “Pain in the Neck”

    I am on lots of meds
    you can hear me “Rattling”

    Are you on any meds yourself????

    Have you seen anyone at a Pain Clinic?????

    Sorry for all of the questions.

    @steve51
  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi @LuckyTony Welcome to the community great you have joined us here, I am sorry to hear of your issues but you have come to the right place we are very friendly and here to support.

    I have suffered with toothache for years due to rotting teeth but I find Orajel available at pharmacies fantastic totally numbs the pain

    I look forwRD TO SEEING YOU AROUND
  • LuckyTonyLuckyTony Member Posts: 10 Listener
    Hi All

    Many thanks for the welcomes and advice. 

    I’m currently on Lanzoprizole (or however it’s spelt) for my IBS but thanks to the IBS I can’t tolerate any oral pain killers (or antibiotics). 

    As soon as she’s back working I’ll be seeing my physio again for back /shoulders and I’m scheduled to see a yoga /Pilates lower back specialist for some targeted exercises. 

    The tooth pain is apparently being caused by nerve flare ups triggered by the shoulder issues and the fact I only have one molar left on that side. 
    Managed a stroke of true genius even for me last night by falling asleep with a heat pad on my jaw.. 

    I think what’s getting me down most is the constant lurching from one issue to another and the lack of sleep which makes the pain an stress so much harder to deal with. 

    Moaning and Bitching over for the mo, 

    Thanks for being there, Perhaps I should have gone for cheerful Tony instead of lucky 😆


  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @LuckyTony

    Please please don’t worry about the “Moaning & Bitching”

    This is why we are all here!!!!!!!!

    @steve51
  • chiariedschiarieds Community Co-Production Group Posts: 9,178 Disability Gamechanger
    Hi @LuckyTony - welcome to this friendly & supportive community, & thank you for joining. You're in good company, as many of us suffer chronic pain....not much fun, & it can be a daily battle to combat it. Personally I find I can usually cope with it, but if I get something 'extra' on top, even a simple cold, or the allergy problems I often get, I can feel totally miserable.
    On a positive note, Scope offers some advice about pain, including a link to the Physiotherapy Pain Association, which you may hopefully find helpful. Please see: https://ppa.csp.org.uk/content/links
    As a (long) retired physio, I can wholly endorse this, & I see you're waiting to get physio again. Exercise does help, & is my mainstay. I also find any form of distraction can help, whether it be reading, watching a film, or pottering in the garden. There are so many things to look at to see what works for you, & often it's a combination of things that may work the best.
    It's a bit of a vicious cycle, but if your pain isn't addressed this can affect your sleep, & any stress undoubtably increases your pain.
    Lastly, I do hope it helps you being here, where there is much understanding about pain, altho the causes of this can be many, & varied.
    A Pain Clinic is a also great idea, & may also be very helpful, as Steve mentions. I can also vouch for Orajel, which I've also used a long time ago; it's like a local anaesthetic agent, so may be possible for you. Ask your GP, or a pharmacist.
    Anyway, please do chat here anytime. We all support each other here.  :)



  • LuckyTonyLuckyTony Member Posts: 10 Listener
    Thank you all so much, bit tired an emotional. It’s late I’m waiting to see what tonight holds. It’s nice to know I can always post my sleepless ramblings here. Thank you again for your welcome. Means a lot 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    edited July 2020
    Hi @LuckyTony

    How are you this morning??????

    I do hope that last night was okay as well???????

    @steve51
  • LuckyTonyLuckyTony Member Posts: 10 Listener
    Hi @steve51

    Yes!! 
    I slept for 7 whole hours!  A record for the last few months 👍. 

    Always surprises me the difference it makes. Still have all the various aches an pains but much less stressed after some sleep. 

    Thanks for checking in, how are you this morning? 

    Tony
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @LuckyTony

    No probs it’s my Pleasure.

    That’s great my friend.

    Yes I am the other end of the spectrum.

    If I don’t have someone to wake me up then I end up sleeping all day.

    This drives me mad!!!

    I do hope that you have a good day???

    @steve51
  • LuckyTonyLuckyTony Member Posts: 10 Listener
    Hi @steve51

    wouldn’t it be great to be able to “Loan out” particular symptoms/issues? 

    We could swap my annoying tendency to wake up at 7am no matter how bad a nights sleep I’ve had for your sleeping all day? 

    A couple of times a week and we’d both get the benefit! 

    Medical science come on.. we’ve got a great idea here! 

    Tony
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @LuckyTony

    Yes that would be a good idea my friend.

    I have got a long list of symptoms/issues.

    If nobody wakes me up I would still be in bed 🛌 now.

    Not good for my meds as I have to take them in the morning/evening.

    @steve51


  • leeCalleeCal Member Posts: 3,694 Disability Gamechanger
    Hi @LuckyTony welcome to the community.
    i suddenly had an increase in volume of tinnitus some six years ago, sounds like jet engines on take off in both ears. At first it drove me nuts especially at night when the house was quiet. People told me I’d get used to it and frankly I didn’t believe them but after about five years I did! Now my tinnitus actually blocks out extraneous noises so I sleep better. It’s like a super power gone wrong! But like the old Neil Sedaka song ‘waking up is hard to do.’ I find I over sleep quite often. Swings and roundabouts.
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