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Dont know where to start! Advice please

Hi
Would be grateful for some advice on where to start please.
My DH has an undiagnosed neurological problem. The neurologist said its progressive and untreatable so why do we want a name ? ( gulp that hit hard).
We need to start planning his retirement. He was furloughed over the 1st lockdown and was improved in that his symptoms were more managable.
I dont know how to start planning his retirement will he be able to retire on ill health without a diagnosis?
Would be grateful for some advice on where to start please.
My DH has an undiagnosed neurological problem. The neurologist said its progressive and untreatable so why do we want a name ? ( gulp that hit hard).
We need to start planning his retirement. He was furloughed over the 1st lockdown and was improved in that his symptoms were more managable.
I dont know how to start planning his retirement will he be able to retire on ill health without a diagnosis?
Replies
My DH has been undiagnosed for 5 years. 3 neurologists . Its not knowing what to plan for ..not knowing whether to start the process now .
https://www.pensionwise.gov.uk/en
Your points and suggestions are helpful thank you.
Hope you DH is going on ok and retirement has helped with his health.
It isnt about a diagnosis more about his ability to complete his job , it may be worth him being referred yo Occupational Health for a work based assessment and they will then recommend both to him and his employer of the best options
Ig he is unable to work currently he should see his gp and get a fit note and start the process that way, he shouldnt give up work without going through either medical dismissal or ill health capability