Coffee lounge
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

A friend too talk too

Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
Hi everyone I have decided too stay on the forum as have made lots of kind nice caring friends 😄 listen if anyone of you needs advice or support with anything or if yous need anyone too talk too I'm here for each and everyone of yous give me a shout X

Replies

  • RAwarriorRAwarrior Member Posts: 873 Pioneering
    Hi @Ibelive2020,

    That’s really great news and we are here to help each other.

    It’s great to hear that you have made some friends on here. 

    I have had so much support from people on here.

    Thank you for supporting other members of the community😁

  • janer1967janer1967 Community champion Posts: 6,075 Disability Gamechanger
    Great you would have been missed 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    Thank you @RAwarrior and thanks janer1967  means alot 
  • 66Mustang66Mustang Member Posts: 3,683 Disability Gamechanger
    edited December 2020
    It's nice to know you will be staying. I would have missed you as well.

    I stopped reading the threads where people were arguing as I don't really enjoy it but I am hoping everyone is friends again now. :)

    There are lots of different characters on this forum and it takes all sorts of characters to make an interesting community. If we were all the same it would be boring. Naturally though, this means people will have their differences, but as long as we keep it civil that's all that matters. :)
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @66Mustang Thanks I know ppl are all diff it would be boring if we were all the same lol I know imbit on the crazy side but hey ho its life 🤣🤣🤣
  • RAwarriorRAwarrior Member Posts: 873 Pioneering
    Hi @Ibelive2020,

    I am glad that you have decided to stay on the forum.

    I agree with @66Mustang

    I think that this forum is here for people to help and support each other. I have had issues with people posting things which I think do not belong here including incorrect information about Covid 19 which has encouraged people to ignore the rules. In those cases I have commented because I don't want other members of the community to be influenced by potentially harmful information.

    Covid 19 is also a very big worry for me because I am in the Shielding group. 

    I have had some interesting discussions with many people on here. I have been able to give my opinion without being judged. I have been able to share things from my perspective as I understand that what has an impact on me on me might not bother someone else. 

    I have had a lot of advice and support from members of the online community and I have also tried to help people in relation to Rheumatoid Arthrtis as along with several other members of the community, I know quite a lot about it.

    I have also learnt a lot about other disabilities and lots of members have shared information which can help others. :)
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @RAwarrior I suffer with arthritis 2 also with PTSD and anxiety and depression I suffer with insomnia and anemia I also have a problem with my blood I dont have a stomach lining I'm ringing the docs tomorrow because I need a ct scan because of various problems I have 3 children with complex needs and also another 3 children I do love this forum very much and all the people on it are so friendly it's nice too be involved in such a friendly community 
  • chiariedschiarieds Community champion Posts: 6,221 Disability Gamechanger
    Pleased you're staying @Ibelive2020 - as mentioned above, supporting each other is what this community is about, & why it's here, as well as to give advice, such as with different benefits, etc.
    Your post means a lot, as it shows that you are willing to support others too, thank you. Just chatting helps us all, especially during this pandemic. I've said quite a few times, that I feel this community has grown stronger this past year, & I have personally enjoyed getting to know some of the lovely people here just a little better. :)
  • cupcake88cupcake88 Member Posts: 628 Pioneering
    Hi there I’m glad your staying this forum has really helped me also 
  • woodbinewoodbine Member Posts: 2,098 Disability Gamechanger
    @Ibelive2020 great news that you are staying !
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @chiarieds thank you and also thanks to you @cupcake88
  • RAwarriorRAwarrior Member Posts: 873 Pioneering
    Hi @Ibelive2020,

    I don't know which type of arthrtis you have but I started a Rheumatoid Arthrtis thread and myself and several over members of the community have posted a lot of useful information. @chiarieds who has already replied to you knows a lot about Arthrtis.
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Hi am glad you are staying i havent any idea what happend i didn't see any of the comments I felt the same as you this this morning but I am ok now I love being on here  
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @RAwarrior I also have Rheumatoid arthritis @lisathomas50 pleased you are ok
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    I have arthritis caused by my lupus but I have learnt to deal with the pain by having pain management and have learnt different ways to cope 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 I haven't learnt to live with the pain doc has not offered me nothing at all he says it's worse in my hands as my fingers are slightly curling now 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    I was tskeing pain killers but because of my lupus the pain killers were affecting my liver  do my doctor stopped my pain killers slowly then I was referred  for pain management a six week course  and thats how I managed my pain which helped me alot you could adk your dr 

    With my hands I put them in a bowl of warm water and try and move my hands in the warm water 

    I can still get in a bath so I normaly get bath bombs  and have a nice dosk  I also use hot water bottles in covers and I either lean back in my chair with the water bootle behind me where ever the pain is 

    I also stand in the shower with the water as hot as I can take it to take the pain out of my shoulders 

    Sometimes pain is caused by  the muscles and bones getting  stiff so light exercise helps me with that 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas I might try what you do see if that helps altho months ago my doc gave me liquid morphine it was strong then he gave me codeine but I was getting stomach cramps off it I will mention it again too doc today as I need too see him bout couple things mainly my lungs and chest etc 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    I had to come off pain killers because it was damaging my liver and causing pain because I was addicted  it doesn't work for  everyone doing the pain management but people who I know its worked for  them and has worked for me its realy about different ways to  manage pain drug free  
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    As you say talk to your doctor and see what  your doctor thinks  I expect its not for everyone as there are different levels of pain  I am lucky I have a understanding dr  
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 1 of my docs r useless so I'm hoping I c my original doctor today 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Good luck  hope all goes well 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 thank you just rung my docs hopeless they are they aren't allowing patients into surgery so doc is going too ring me at some point this morning!! Poss fob me off with painkillers like they always do 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    What pain killers do you take just try talking to your dr I am not saying you don't need pain killers see what your dr sats 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    I just thought that maybe pain management would help especially if they are strong pain killers 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas my doc has had me on morphine patches liquid morphine tramadol and codeine in past but not had any painkillers for about a year I try too plod on they to get by myself as dont want to be a burden to nhs got app today at 1.45pm I cant take pain anymore hun sounds stupid I know 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Its not stupid pain is awful but its worth trying some of the things I said to see if it helps hope you can getsome relief from the pain 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    Been too docs hes took my blood pushing results thru for in morning also got to go to hospital tomorrow for x Ray's hes also prescribed me codeine 30mg tablets and propranolol tablets at 40mg each 3 times a day and I have invita D3 tablets too take 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Ok  just be careful and take care of yourself 
  • janer1967janer1967 Community champion Posts: 6,075 Disability Gamechanger
    Glad you are getting somewhere hope the meds help and you get some answers so you can get right treatment 


  • Tori_ScopeTori_Scope Community Team Posts: 2,747 Disability Gamechanger
    Fingers crossed the medication helps, and that the tests help you to find a way forward @Ibelive2020 :) And well done for getting through the appointment! 
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • chiariedschiarieds Community champion Posts: 6,221 Disability Gamechanger
    Hopefully the meds will help you, & I'm pleased your concerns are being taken seriously & getting investigated. You're now moving in the right direction to start feeling that bit better. :)
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @Tori_Scope thank you they did not have my b12 tablets in so gotta go get them tomorrow but took my other 2 sets meds I hope will feel pain free in bout an hour and thank you @chiarieds means alot 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Glad you got the help you need  and hope the medication helps with the pain sorry my first message was short my battery was going flat had to get my charger  hope your feeling better about things now and uour pain killers are  working 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 took painkillers but just vomited 
  • chiariedschiarieds Community champion Posts: 6,221 Disability Gamechanger
    I'm so sorry @Ibelive2020 - I absolutely hate being sick; it's horrible. Try this breathing exercise for me. It helps reduce stress & alleviates pain, & is something I use each night to help me sleep. Please see: https://www.guysandstthomas.nhs.uk/resources/patient-information/therapies/abdominal-breathing.pdf

  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @chiarieds thank you I'm gonna try eat something as not ate today was 2 anxious bout docs app then take bedtime meds hopefully I will settle 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Hope your ok not a good idea lol tskeing medication on an empty stomach  let me know how you get on eat something calm yourself down a bit and try and relax tension can also cause pain 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 I'm eating tea now a prawn salad 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Thats good I like prawn salad hope your feeling better now  hope your medication works for you 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 I couldnt eat salad was in too much pain 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Have you had you r pain killers 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 yes I had them but was sick and brought them back up
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Oh gosh maybe they aren't suiting you have you had problems with your  liver  only asking  because I cant take pain killers due to liver damage you need to phone the dr  its not good if they keep makeing you sick 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas it was because the tablets I took was 30mg per tablet last time I took those they were 15mg per tablet doc done full blood count yesterday liver included I get results back this morning as doc has urgently pushed them through 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    If they are makeing you sick I don't think you should take them  and wait for your blood tests to come back 
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 had results bk 3 abnormal results 2 normal results and i need to get 1 my bloods repeated plus doc sent more meds to chemist for me today on top of the meds I got yesterday they wont tell me nothing about abnormal results but been booked in too see doc on monday at 10.30am to talk me through them and to have 1 my bloods repeated 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    They eont talk tou on the phone about your results try not to worry and wait to see what the dr has to say there must be a reason  they are giving you so many tablets 

    Make sure your eating properly because you need to build yourself up  plus you need to eat with the tablets you are tskeing 

    I am here if you want to chat it must be a worrying  time for you 
  • chiariedschiarieds Community champion Posts: 6,221 Disability Gamechanger
    Hi @Ibelive2020 - hope you might be feeling a little better. I'm sorry you are having to wait to discuss things with your GP, but an abnormal blood test might just mean you need some meds to sort things, or they'll need to check it again in the future to see if all is well after all, which might also be the case.
    As we're not medically qualified, please do mention any concerns to your GP, who knows your medical history, & is in the best place to help you, & discuss the results, rather than stop taking some of your meds. :)
  • Ibelive2020Ibelive2020 Member Posts: 308 Pioneering
    @lisathomas50 thank you I'm just gonna get through each day best I can try not to over think things other wise I will go crazy @chiarieds yes I'm feeling bit better than yesterday was vomiting and crying in pain but today I feel better thank you hope you are well too 😊
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Hope you get things sorted out soon  and start feeling better hopefuly your dr will be able to get things sorted out here if you want to chat  about anything 
  • chiariedschiarieds Community champion Posts: 6,221 Disability Gamechanger
    Pleased you're feeling a little better. I think it's possible that your GP is just wanting to talk things through with you face to face because he/she has identified that you need a repeat blood test, so, as you're going into the surgery anyway, they will take the opportunity to talk to you. I'm OK, thank you. Just wanted to ensure you listen to your Drs. above all. :)
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    If your still being sick with your pain killers you need to tell your dr unless you already have told your dr already 
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    I just want to share something as normaly I have my family who would come and see me but because of our lockdown in wales that won't be happening 

    22 years ago I gave birth  to Adam a beautiful baby boy  who sadly died 12hrs after birth  

    Today is Adams  birthday so happy birthday my beautiful boy  people say time is a great healer but for me it still feels like yesterday  

    Thank you if any one wants me to have this taken off I will understand 
  • Tori_ScopeTori_Scope Community Team Posts: 2,747 Disability Gamechanger
    I'm sorry to hear that you lost Adam @lisathomas50. I'm sure today must be a particularly difficult day for you, especially as you're not able to see your family. 

    Are you able to speak to your family on the phone? Or stay in touch with them another way?

    Please also let us know if you'd like us to direct you towards some organisations that specialise in this area, who could perhaps help you to work through your grief. You're unfortunately not alone in experiencing this, so please know that we're all thinking of you.
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • lisathomas50lisathomas50 Member Posts: 1,191 Pioneering
    Thank  you tori scope I am ok I know that this sounds weird but on this day good things normsly happen aswel as being sad 

    Today I had my eyes tested after my eye operation  I had six weeks ago and I can drive again so happiness did come into a sad day  thank you for your kind words 
  • Tori_ScopeTori_Scope Community Team Posts: 2,747 Disability Gamechanger
    I'm glad good things usually happen, and that you're now able to drive again @lisathomas50! That's great news.
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
Sign in or join us to comment.