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Advice please DLA going over to PIP for my son

Hi my name is Jane and I have a15/16 year old son with cerebral palsy, hydrocephalus, autism and also wants to change gender and counts calories. He has wanted to kill himself to which he had private 1 to 1 sessions with a wonderful man at chamns and some great support from school. Over these teenage years it has been really hard work, heartbreaking and exhausting but I wont give up on him. His mental health has struggled badly he hates been disabled and gets so angry. My son walks with a kwalker and has a wheelchair and requires help in various aspects, dressing, washing and more. I try to go day by day and and at his pace and slowly we are getting there. I now have this dilemma of swoping from DLA to PIP and they asked do I think he is capable of his own finances. I'd like to say yes and hopefully in a couple of more years I think he may well do so but at present I dont think he is ready. I want him to be independant as possible, he isnt at all street wise and likes to stay in his room with his door shut all the time. My son breaks down quite often about his looks, his weight, his disabilty theres so much going on in his head and I dont know if he knows whether he is coming or going. He is amazing with creativity and English and french etc but when it comes to maths he is totally lost and takes so long to get his head around it all. He sees things 1 way only and once his mind is set that is it. There is no way I could put him on a bus and let him go to a destination on his own he would have a major breakdown. Sorry to waffle on I just dont know how to answer this letter. I want so much for him to achieve and believe he will eventually it just takes a while longer than other the same age. I need to say no he isnt capable of pip on his own but I feel so awful writing that but I know my son. I just dont know what to do. Can anyone offer any advice please Regards Jane xx -
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Advice on becoming an appointee is here https://www.gov.uk/become-appointee-for-someone-claiming-benefits.
Hi @Janey1969 and welcome to our community. Thank you for getting in touch 😊
It’s understandable to be apprehensive about your son reaching an age where he starts transitioning to more ‘adult’ services and provisions such as PIP. Some people in similar circumstances follow the appointee route, as helpfully linked to by @calcotti above. This can be stopped should your son reach a point where he can safely manage his money however in the short-term gives you the rights to deal with benefits on his behalf.
Are you confident with filling in the PIP2 claim form? Please let us know if you need any help doing this. And, I’d recommend you take a look at Scope’s advice in the first instance.
It’s good to hear that your son received support from CAMHS around his suicidal thoughts. That must have been a scary time for both of you. If ever these thoughts do resurface, please get medical help asap and remember support services such as The Samaritans and SHOUT can provide immediate help.
You also mentioned that your son wanted to change gender. Are you getting sufficient support with this? Mermaids are a great organisation to provide help and resources with this journey and I’d highly recommend taking a look at their website if you haven’t already. Is the counting of calories something you’ve discussed with your GP too? I understand this is a habit that can quickly become harmful so I’d recommend speaking more about with a professional when you can.
I’m going to tag in our resident Cerebral palsy Information Specialist @Richard_Scope so he can add any suggestions, where appropriate. But please do keep in touch and let us know how you get on. If you have any questions, fire away. We’re here to support you 😊
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Regards Jane xx
Wishing you a warm welcome to the community
I just wanted to see how you are at the moment? Have you found the advice given by members useful?
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Thanku to everyone that's offered advice. I havent been on here for a week or so as my son got a viral infection that completely knocked him for six but he is all better now thank goodness xxx