Advice please DLA going over to PIP for my son
Comments
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@Cher_Scope may know more
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Thanku xx
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I am not clear whether you asking about how to fill out the PIP2 health form or about whether you should becoming an appointee to act behalf of your son in respect of his benefits.
Advice on becoming an appointee is here https://www.gov.uk/become-appointee-for-someone-claiming-benefits.
Information I post is for England unless otherwise stated. Rules may be different in other parts of UK. -
Hi @Janey1969 and welcome to our community. Thank you for getting in touch ?
It’s understandable to be apprehensive about your son reaching an age where he starts transitioning to more ‘adult’ services and provisions such as PIP. Some people in similar circumstances follow the appointee route, as helpfully linked to by @calcotti above. This can be stopped should your son reach a point where he can safely manage his money however in the short-term gives you the rights to deal with benefits on his behalf.
Are you confident with filling in the PIP2 claim form? Please let us know if you need any help doing this. And, I’d recommend you take a look at Scope’s advice in the first instance.
It’s good to hear that your son received support from CAMHS around his suicidal thoughts. That must have been a scary time for both of you. If ever these thoughts do resurface, please get medical help asap and remember support services such as The Samaritans and SHOUT can provide immediate help.
You also mentioned that your son wanted to change gender. Are you getting sufficient support with this? Mermaids are a great organisation to provide help and resources with this journey and I’d highly recommend taking a look at their website if you haven’t already. Is the counting of calories something you’ve discussed with your GP too? I understand this is a habit that can quickly become harmful so I’d recommend speaking more about with a professional when you can.
I’m going to tag in our resident Cerebral palsy Information Specialist @Richard_Scope so he can add any suggestions, where appropriate. But please do keep in touch and let us know how you get on. If you have any questions, fire away. We’re here to support you ?
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Thanku @Cher_Scope my son is under medical supervision re calourie counting and he has an amazing consultant, she is a lovely lady so fingers xd. Also he has a lovely councillor that video times every week for both him and myself and she liases with the school if I need her too, she also has put him in contact with a group re gender change but he felt they weren't right for him and she has just mentioned Mermaids to him this week so we are going to contact them aswell. I think I have tried to cover every angle without too much pressure on him aswell as his mental health is so important, I dont want him to feel everyone is coming from all angles and it becomes too much. I was also thinking of putting down being an appointee aswell. To people on the outside world he will put on a brave face and tell them he is fine and doesnt need anyone's help but behind closed doors it is a whole different matter. My son will fall to pieces and the outbursts are awful at times its heartbreaking to watch and hurtful aswell because he lashes out at myself and sisters verbally. He just doesnt want to accept his disability and the difficulties he faces. He says he should beable to do everything for himself and hes not a baby anymore. I do show him alternative ways to do things and sometimes we end up laughing and sometimes anger kicks in but we do find ways. He is just so embarrassed even though I reassure him it's fine and acceptable and unique to be different. I truely thanku for taking the time to answer and sharing your advice it means so much to me. Sometimes a little chat and off load makes all the difference. Thanku again for your kindness Jane xx
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Hello @Janey1969
Wishing you a warm welcome to the community
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@Ross_Scope Hi thanku yes I did find advice useful. I just told the truth and sent it off so fingers xd it gets sorted. These forms are horrible and really upsetting at times especially when cases are genuine. I hear so many stories its worrying.
Thanku to everyone that's offered advice. I havent been on here for a week or so as my son got a viral infection that completely knocked him for six but he is all better now thank goodness xxx
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