Hi, my name is Kila2311! — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is Kila2311!

Kila2311 Member Posts: 1 Listener
I have lupus and have battled this awful condition for 27 years and managed to continue to work throughout, although now I only work part time. My part time hours have been getting fewer and fewer as time has gone on and now at 53 years of age I am really struggling to work - my days off are just days in bed resting/sleeping due to exhaustion so this is no quality of life. 
I am seriously considering early retirement due to ill health but have no idea what to do or how to start going about it! I have just started a new job 4 weeks ago, after a year of shielding/furlough through lockdown and I am already exhausted. 
Please advise... 


  • janer1967
    janer1967 Member Posts: 12,290 Disability Gamechanger
    Hi there 

    Early retirement can be hard to get if you are wanting to take your pension early 

    Is this what you are wanting to do ? 

    Another option is to leave work on grounds of ill health and then if entitled claim benefits , or you could go down the medical dismissal route 

    It may be worth speaking to hr and be honest and ask what your options would be or read the relevant policies if they are available to you 

    Any further questions just ask 
    Here to help with my experience in hunan resources and employment rights 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,560 Disability Gamechanger
    Hi @Kila2311 - Welcome to the community & thank you for joining. I'm sorry about the problems you have; feeling so exhausted must be awful. I hope the options mentioned above are helpful to you, but please come back with any questions. :)
  • Ross_Scope
    Ross_Scope Posts: 4,971

    Scope community team

    Hello and welcome to the community @Kila2311

    I'm sorry to read about your difficulties with lupus, I hope you've found the responses so far helpful. 

    Do you have support to manage the condition from your GP or other loved ones?

    And have you discussed your condition with your new employer, in order to explore any potential solutions which might make you feel a bit better on your days off?
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Talk to our chatbot and give us feedback on the community.
  • lisathomas50
    lisathomas50 Posts: 4,595 Disability Gamechanger
    Hi I have lupus I have had to drop my hours to part time I am always tired and worn out and have lots of other symptoms hope you can get the help and support you need x


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.