Pregnancy, Lupus and standard rate payments. Should I inform DWP that I'm pregnant? — Scope | Disability forum
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Pregnancy, Lupus and standard rate payments. Should I inform DWP that I'm pregnant?

Leanneroro
Leanneroro Member Posts: 2 Listener
edited September 19 in PIP, DLA, and AA
Hi all xx just curious to know if i should contact DWP and inform them im pregnant (unplanned but not unwelcomed) i have systemic Lupus as wll as a myriad of spinal issues... im on the standard rate for just the first part.. any advice? thanks so much x

Comments

  • poppy123456
    poppy123456 Member Posts: 23,843 Disability Gamechanger
    Hi,

    No, absolutely not because there's no need to report absolutely all changes. Being pregnant doesn't mean you no longer have your health conditions. Congratulations also!
  • Tori_Scope
    Tori_Scope Posts: 6,030

    Scope community team

    edited September 19
    I just wanted to send my congratulations to you too @Leanneroro :) How are you feeling about it all?
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  • Dan2three
    Dan2three Member Posts: 16 Listener
    I would inform pip if the time comes where pregnancy makes your health conditions worse and effects your daily living more. 
  • poppy123456
    poppy123456 Member Posts: 23,843 Disability Gamechanger
    Dan2three said:
    I would inform pip if the time comes where pregnancy makes your health conditions worse and effects your daily living more. 
    Why would they need to do that? If there’s any pregnancy related issues it’s likely to be short term which wouldn’t affect their PIP as already advised.
    Even if a person’s condition has got worse this doesn’t mean they will score more points for a higher award.  
  • Dan2three
    Dan2three Member Posts: 16 Listener
    edited September 19
    This was advice I was given by pip themselves as currently pregnant and has effects on my conditions. The effects the pregnancy could have on her already spinal issues may not only be short term I know this from experience. 
    My advice was not given on the grounds of assuming they would recieve more points just on grounds that when a conditions worsens you are meant to inform pip. 
    I was not trying to override your advice sorry if you felt that way, was just joining a discussion with extra advice also. 
  • poppy123456
    poppy123456 Member Posts: 23,843 Disability Gamechanger
    When you ring PIP/DWP you are ringing a call centre and not DWP their self. They are not benefits advisers and have almost no benefits knowledge. They are reading from a screen. They are the last place a person should go to for such advice. 
    As I advised, a worsening of condition doesn’t mean you need to inform DWP because it doesn’t mean you’re entitled to more points. When you report a change of condition you are sent more forms, which means you risk losing what you already have. You should get expert advice before doing anything else. 
  • Dan2three
    Dan2three Member Posts: 16 Listener
    Can i assume you are the expert? the statement (You should get expert advice before doing anything else) maybe should of been issued in your first advice post to leanneroro if you are not, should it not?
  • poppy123456
    poppy123456 Member Posts: 23,843 Disability Gamechanger
    I never said i was the expert! What i advised was correct, being pregnant is not classed as change of circumstances that needs to be reported. I've said what i need to say and won't respond any further to your comments.
  • mikehughescq
    mikehughescq Member Posts: 7,508 Disability Gamechanger
    edited September 19
    Dan2three said:
    Can i assume you are the expert? the statement (You should get expert advice before doing anything else) maybe should of been issued in your first advice post to leanneroro if you are not, should it not?
    Can I suggest you get beyond 14 posts and read the forum a little more before you go into combat mode and querying expertise or adding your own inaccurate statements. 

    There is zero need to notify a pregnancy as has been stated. There is certainly no requirement to notify PIP of anything such as a condition worsening because that is not a relevant change of circumstances. A relevant CoC is when you have a change such that most people would believe it would increase your benefit. Not every change would result in extra points and thus there is nothing to disclose unless extra (or less) points would be likely. 

    It is also 100% correct to say that you have not been advised by PIP. You have at best been advised by someone in a call centre with neither training nor a responsibility to give advice. They are supposed to do no more than answer FAQs using scripts. If they’re not doing that then essentially they’re making it up to sound important rather than saying “I’m really sorry, I have no idea”. Indeed not even actual DWP staff have any advice giving function. Essentially they are the single worst place you could go for benefits advice. 

    Should a pregnancy exacerbate pre-existing conditions the same assessment - will it mean extra points and will they change the award - needs to be made before making a disclosure. 
  • Dan2three
    Dan2three Member Posts: 16 Listener
    edited September 20
    Thank you for that clarification.

    [Post edited and content removed by moderator: personal attack]
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,579 Disability Gamechanger
    Hi @Dan2three - I don't believe we've 'met'. This forum is open to everyone talking about their personal experience(s). However, as people read these posts to find out more, then any inaccuracies are corrected to better help along the way.
    Poppy has advised to the best of her extensive benefits knowledge, but sometimes, as she advised, if anyone is contemplating putting in for a change of circumstances, they would benefit from getting some advice local to them, e.g. a Welfare Rights Office, or Citizens Advice. Everyone's circumstances are different....whether they might get additional points to change a current award, the length of such an award, etc. so they should get local expert advice. As stated, pregnancy wouldn't normally be classed as a change of circumstances, however.
    Everyone is welcome here; I'm sorry you feel otherwise. As for Mike, perhaps you'll stick around long enough to find out how he also helps so many of our members.
  • Dan2three
    Dan2three Member Posts: 16 Listener
    @mikehughescq
    I do agree I was advice by Pip enquire line (call center) , it was then added to my notes incase further need in the future just to prove how long the extra effects have been in play for as yes I do agree with poppy it needs to be a long term effect. 

  • Ross_Scope
    Ross_Scope Posts: 4,989

    Scope community team

    Hi all

    I just wanted to inform everyone that this discussion has now been re-opened, however certain comments have been removed or edited. Please keep in mind our community house rules when posting on the community, and ensure that all conversation remains respectful towards your fellow members.

    I hope you have found the replies here helpful @Leanneroro :) 

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    Talk to our chatbot and give us feedback on the community.
  • Leanneroro
    Leanneroro Member Posts: 2 Listener
    hey everyone, sorry my road has been having works done and internet is messed up!

    so I was curious because, I have systemic lupus, spinal spondylosis, two herniated discs at C level(neck) and two herniated discs at L level (lower spine) I have lupus related seizures too.
    I had my first child 10 years ago before I was ill, but now this lil surprise has come along I'm really feeling the impact on my body already and I'm only 2 months in! the dwp declared me fit to work even though id had a seizure in the car on the way there and could barely form a sentence, i appealed and got the minimum points.. I'm not too worried about the lupus as that will never go away but I'm concerned that my reality during and after this pregnancy is going to have devastating consequences to my spine and mobility as I'm now also 40... I didn't mean to get tempers flaring :( i just get super confused with what i can do.. many thanks all xxx
  • poppy123456
    poppy123456 Member Posts: 23,843 Disability Gamechanger
    You can't be found fit for work when applying for PIP because it's not about your ability to work. People claim PIP and work.

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