Hi, my name is amberinni! help for people with epilepsy claiming pip for continual supervision — Scope | Disability forum
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Hi, my name is amberinni! help for people with epilepsy claiming pip for continual supervision

amberinni Member Posts: 2 Listener
edited October 7 in PIP, DLA, and AA
help for people with epilepsy claiming pip for continual supervision


  • Ross_Scope
    Ross_Scope Posts: 4,955

    Scope community team

    Hello @amberinni

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  • amberinni
    amberinni Member Posts: 2 Listener
    Yes my son is about to lose his standard care and enhanced mobility award after reassessment,the report has several errors and some downright lies, He was been diagnosed with tonic clinic epilepsy in 2007. Is medicated but this does not stop the seizures,but has reduced them to around 3 a month, he also has Absence seizures on a dailey basis, around 12.. and I was just looking for some help with requesting a Mr. 
  • woodbine
    woodbine Community Co-Production Group Posts: 5,285 Disability Gamechanger
    When you do the MR don't talk about lies, they are usually just HCP opinions you don't agree with, instead concentrate on the areas where he didn't score points and you think he should have and why, giving real life examples of what happens when he attempts the descriptor.
    Out of  interest how many points did he score and was this the DM decision or just from the copy of the report, which of course isn't the final decision.
    I am a person with epilepsy not an epileptic, my illness doesn't define me.
  • lillybelle
    lillybelle Member Posts: 562 Pioneering
    Can I also suggest that you look at the new law regarding safety, the risk of harm and the need for supervision with an unpredictable condition like epilepsy has been Taken into consideration.

  • woodbine
    woodbine Community Co-Production Group Posts: 5,285 Disability Gamechanger
    A GP wrote on one of my early sick notes when I started having seizures was "the risk and reality of seizures" which I thought summed it up quite well, and it's a phrase I've used on successful claims for IB,DLA,ESA AND PIP.
    As I live with the constant threat and the reality of seizures several times a day either petit mal or grand mal.
    I am a person with epilepsy not an epileptic, my illness doesn't define me.
  • mikehughescq
    mikehughescq Member Posts: 7,474 Disability Gamechanger
    The concept of continual supervision does not really exist in PIP. That was a DLA thing.
  • HJP290
    HJP290 Member Posts: 26 Connected
    edited October 10

    my boyfriend suffers with these type absent tonic clonic  + cluster sezuires and postical physcosis causes memory problems agression delussions cause by how many sezuire he has . More under control new thanks to his new epilepsy nurse she is a 😇  and gave us a new emergency tablet 6 months ago to stop the sezuires once they start . Im not sure if im aloud pit the medictation on here sorry but if been fab gone from have 30+ sezuires when starts off which we never new when to have 3/4 a week 

    His problems are well documented with police snd hospital . Consultants etc 

    but still got found fit to work in his UC assement the MR is now in . And got this epilepsy nurse to send me letter to back up the MR anyways this is about pip . 

    he only had epilepsy for just over a year n half  had a brain injury so only had one assement with them but i had bad accident coming up to 3 years ago so no what the assements are like .  no luck between pair of us  🤦🏻‍♀️ 

    he claims pip at standard care only becuase he to scared to put in for higher one and lose it and have go threw appeals etc and he cant be dealing with it .   Just get as much documentation together as possible and letters of consulations with facts like this in back you up as much as possibile 

    this is what she stated 

    Can not cook hot foods ended up with 3rd degree burns on his leg and torso just warming up spaggetti and meatballs in microwave n had a fit . 

    need supervison while eating nearly choked few times after having sezuire while food was in mouth 

    while bathing  . Incase has sezuires in bath risk of drowning.

    not to be left on own sleeping

    was advise to get under bed alarm system from council for when he was alone  risk of suffication injury fall

     doesnt have any warnings or certain times days etc random and extremly dangerous 

    how affects his short term memory . 
    So doesnt remember appointments medication .

    not to leave the house alone or walk anywere alone .
     ( had issues were he dropped in street infront of on coming traffic ) 

    about the physcosis deluison manic danger to self others . 

     This is just example of what she wrote that fitted in with few off  pip criteria . So examples of what he cant do and real like examples of why he cant . Pretty much just means constant supervion but not just saying that . Hope helps abit :) if do need to put MR in x
  • lillybelle
    lillybelle Member Posts: 562 Pioneering
    I would put in an MR with all your evidence . Get somebody,s help to write you a letter.
    im sure he could get the higher rate of pip


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