I have SB. As I get older, I'm starting to develop other things e.g. digestive issues. Anyone else? — Scope | Disability forum
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I have SB. As I get older, I'm starting to develop other things e.g. digestive issues. Anyone else?

micheleholmes
micheleholmes Member Posts: 1 Listener
edited November 12 in Start here and say hello!
Hi im 58 I have SB I have done ok most of my life just a few operations to straighten me up now I just walk with a limp. As I get older however things are starting to develop more than my friends and I wonder if it is to do with SB   Digestive issues mainly. Anybody else the same 

Comments

  • JustPete
    JustPete Community Volunteer Adviser Posts: 65 Connected
    Hi @micheleholmes and welcome to the online community.  I'm sure you will find this 'place' to be both informative and supportive.

    I have CP, not had any operations, but perhaps am a little twisted.  I used to eat very well, but now I am conscious that when I eat I need to concentrate otherwise things do go awry.  

    I think there are many impairments that are not officially deemed 'degenerative' but actually they are.  Ironically, on a personal level, I think I am paying for the 'sins' of being independent minded when I was younger.  Now my body creaks and complains, where before it would just do as I said!!!!
    I am a Scope Volunteer.   I have knowledge about life! Additionally, but not limited to: living with a disability, employing personal assistants (requiring 24x7 care), education (having reached PhD level), sexuality (being gay) managing relationships having a disability (tricky), technology and assistive technology (being a geek), sport & leisure (being a Paralympian and on various committees whose purpose is to maximise inclusion at all levels), mental health (both through personal experience and supporting others), Arsenal Football Club (a necessary part of life).  If I can't help, I will endeavour to find somebody who can.

    "You are braver than you believe, stronger than you seem, smarter than you think and loved more than you'll ever know." - Winnie The Pooh
  • Teddybear12
    Teddybear12 Member Posts: 1,347 Pioneering
    edited November 12
    Hi @micheleholmes I do not have SB I have ulcerative colitis and have to be careful what I eat. I have noticed as I get older that somethings now do not seem to agree with me anymore. Perhaps as we get older no matter what the main issue is we have more digestive problems. Just my thoughts. Have you spoken to your GP about your concerns?
  • Reg
    Reg Member Posts: 99 Pioneering
    Hello @micheleholmes

    A very warm welcome to the forum and Scope community.

    I am afraid I do not have SB . I have mild CP  but I can understand what you say about ageing with a health condition . It can feel as if you are in a different time zone to your friends, can't it, when they are more active than you or do not have the same health concerns.

    I hope you find the forum really useful and that you get some replies from others with SB.      

     
    Reg

    I am a Scope volunteer.
  • Tori_Scope
    Tori_Scope Posts: 6,610

    Scope community team

    Welcome to the community @micheleholmes :) How are you doing today? 

    Thanks for posting about this. By SB, do you mean spina bifida? If so, the NHS website does suggest that some people with spina bifida can experience problems with their bowels. Does that sound familiar to the digestive issues you've mentioned? 
    Bowel problems

    The nerves that run through the spinal cord also control the bowel and the sphincter muscles that keep poo in the bowel.

    Many people with spina bifida have limited or no control over their sphincter muscles and have bowel incontinence.

    Bowel incontinence often leads to periods of constipation followed by episodes of diarrhoea or soiling.
    You may also find this page on being an adult with spina bifida on SHINE's website helpful. 
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