Hi, my name is annelies! Trying to fill in my son’s PIP form and feeling overwhelmed — Scope | Disability forum
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Hi, my name is annelies! Trying to fill in my son’s PIP form and feeling overwhelmed

annelies
annelies Member Posts: 3 Listener
edited November 2021 in PIP, DLA, and AA
Trying to fill in my son’s PIP form and feeling overwhelmed.  He has ASD, ADHD, Depression, Anxiety, CFS/ME and a rare eating disorder called ARFID.  And I’m STILL convinced the assessor is going to say he doesn’t need support.
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Comments

  • Ross_Scope
    Ross_Scope Posts: 5,697

    Scope community team

    Hello @anneliese

    Welcome to the community, I'm glad to see you join us and I hope you are doing okay today.

    Sorry to hear that filling out the form is causing you to feel overwhelmed, is there a particular aspect of it that is making you feel that way or is it just in general with the whole process? 

    If it would help, you could contact a friend or family member for support with filling out the form? Alternatively, you could always contact CAB, our helpline or enter your postcode into Advice Local, to access some support with it.

    How is your son? Does he receive support to manage his conditions?

    I have moved your discussion over to our PIP category :) 
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  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,043 Pioneering
    Hi @annelies Welcome to the Community. I am sorry that you are having problems filling in your sons pip form. Just do a bit at a time and then have a break it can be overwhelming. Fingers crossed you manage with some help. Good luck. Take care.
  • annelies
    annelies Member Posts: 3 Listener
    We have a bit of a rush on.  We were filling out the form slowly, and then even though we hadn't submitted it, were given a date for the assessment which is on 8th December.  So now we are having to do it in a rush, while still trying to get all the detail in that we're supposed to do.  And a friend of mine who spent 4 months on her application, and has Fibromyalgia, depression and agoraphobia and spends most of her days in complete pain and distress, and can't always make it to the toilet in time, has just had the most brutal phone assessment - 2 hours of the assessor trying to get the answers she wanted, rather than listening to the truth.  It feels as though no matter how hard we try to follow the guidelines, we won't be believed.

    I'd love to know if anyone HAS had a good experience of an assessment, and what they think would help us?
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,043 Pioneering
    Hi @annelies Unfortunately you only tend to hear of the unsuccessful claims on the site, as people who have been successful do not need any help or support. Please believe you must have a good a chance as anyone else. It is not about  his diagnoses but how it affects his every day life. Can he do an activity reliably ie safely to an acceptable level. Good luck. 
  • annelies
    annelies Member Posts: 3 Listener
    Thank you, that is unbelievably helpful!!

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