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Hello Group

10608331961 Community member Posts: 2 Listener
I'm not sure if this is the forum for me or not but here goes, 
I have been suffering from back and leg pain since my twenties and now in my early sixties I now am some way towards a diagnosis and it is looking like AS.
According to the rheumatologist I have the HLA marker and most of the symptoms.
Could or should I have had a diagnosis earlier?


  • Biblioklept
    Biblioklept Community member Posts: 4,707 Disability Gamechanger
    Sorry to sound stupid but what is AS @10608331961? Suffering pain for that long with no idea why must have been so difficult :( 
  • 10608331961
    10608331961 Community member Posts: 2 Listener
    AS is short for Ankylosing Spondylitis and yes it was trying to say the least not knowing what the 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Hello @10608331961

    Welcome to the community, it's nice to see you join us and I hope you are getting on okay in this heat.


    This is a very supportive and welcoming site to be a part of so I’m hopeful that you’ll find it to be a positive outlet. Feel free to have a look around and get involved wherever you’d like 😊 I have included below a few of the pages I’d recommend having a look through to get used to things:

    • The virtual coffee lounge which is one of our categories, in which we play games and talk about general subjects such as hobbies and interests
    • The recent discussions page, which shows an overview of everything happening across the community
    • The categories page, which shows a full list of discussion groups on the community

    If you have any questions at all then don’t hesitate to ask.

    Sorry to hear that you have had this pain for so long and are only now approaching a diagnosis. It must be a bit of a relief though to finally know what it is that is causing the pain.

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