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Hi, my name is Cannonball5666!

Cannonball5666 Community member Posts: 2 Listener
Hello everyone my name is John
and I retired from work back in Feb this year. My journey with Essential Tremor started back in the early 70s suffered with this in my left hand/arm some 10 years ago my right hand started to shake and wasn't able to write. Tried the drugs none would stop the shaking Propranolol would slightly ease the tremor. 2019 had the opportunity to have Deep Brain Stimulation for Essential tremor (Bi-lateral Cordal Zona with a bluetooth battery and programmer. November 2021 had a second operation to fit Directional leads. 😃 👌(don't normally write online but I feel I need to help others with what I have gone through. cheers 


  • Cannonball5666
    Cannonball5666 Community member Posts: 2 Listener
    Thanks for welcoming me to the forum teddybear. First time on this site so apologies if mistakes are made. I'm 66 year old male suffering from Crohns disease and 2019/2021 had Deep Brain Stimulation for Essentail Tremor currently retired and claiming state pension and pip. I found getting information for DBS with the exception of the consultants, Specialist nurses ect but it the experience that I have been through. it been a  big change ect learning to write normally my wife would write carry plates and cups of tea/coffee, I'm going to stop here for now and see if anyone can add or whatever to my ailments. Thanks 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    A very warm welcome to the community @Cannonball5666 and thanks for joining the forum and sharing a bit about yourself. 

    It can be a bit scary starting out so well done for posting! It sounds like you've been through a lot of changes over the last few years. I hope the community can act as a friendly and supportive place to spend time.

    How was your weekend?

    Please feel free to explore the forum whenever you would like to. The coffee lounge is a good place to start, you can chat to other members and play games.

    If you'd like to see all the different topics for discussion just visit our categories page, or if you'd prefer an overview of the latest conversations here, head to recent discussions.

    If you need a hand with anything, do ask, and we'll help as best we can :)

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