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traceeuk
traceeuk Online Community Member Posts: 1 Listener
in Start here and say hello!
Hi all x I am a mum to a daughter who has fhufs. She is 34 years old and I didn’t even know this site was available as this would have been so much help in her early years . Been trying to locate other people with her condition for so many years so you never know but maybe successful on here x 

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  • Tori_Scope
    Tori_Scope Scope Posts: 12,453 Championing
    Welcome to the community @traceeuk :) Thank you for joining us! It's great to have you on board. 

    I can't say I'm familiar with FHUFS. Are you referring to femoral hypoplasia-unusual facies syndrome? 

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