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  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
    The user and all related content has been deleted.
  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing
    edited April 2025

    @Catherine21

    I don’t think there’s a Human Rights Act 2022’, but from a quick search as a layperson, I found mention of a Bill of Rights (2022)intended to reform the Human Rights Act 1998. It looks like that bill never progressed beyond the first reading in Parliament, so as it stands, the original Human Rights Act 1998 remains in effect.
    Best Wishes!

  • noonebelieves
    noonebelieves Community Member Posts: 705 Championing

    @onebigvoice

    I read your post with wide eyes and deep admiration. Your strength and resilience in enduring such a brutal, long-term legal battle is truly inspiring. I couldn’t even manage one benefit tribunal-it was overwhelming and incredibly stressful. I honestly don’t know how you’ve done it. Hats off to you.🫡

    I truly couldn’t believe it when you said you were physically assaulted by an assessor. That’s truly appalling behaviour😡-as if we don’t already suffer enough at the hands of the DWP. I’m so sorry to hear that, and I sincerely hope you get the justice you rightfully deserve.

    I wholeheartedly wish you all the very best for your final hearing (hopefully!🤞) and a well-deserved victory. Thank you for sharing such valuable insights. We really look forward to your continued support, and we could certainly use your ONEBIGVOICE and lived experience to help fight against this ruthless government’s benefit cuts.

    Disabled Voices Matter

    Take care, my friend.
    With respect and solidarity ✊

  • Anniebeau
    Anniebeau Community Member Posts: 27 Contributor

    An open letter to the chancellor please sign and share

    https://sites.google.com/view/openletterdisabilitybenefits/home

  • sarah_lea12
    sarah_lea12 Community Member Posts: 442 Empowering

    if the benefits changes go through and I lose pip , it will mean basic UC with LWCRA .

    We would not be paying council , mortgage shortfall ,or water bill .

    SMI would be the only money the mortgage would get paid , they would go for repossession and we'd be in emergency accommodation if we fit the criteria , something to look forward to . NOT

  • Anniebeau
    Anniebeau Community Member Posts: 27 Contributor

    can we write to MPs that are not our MPs? Will they read our letters I wonder

  • onebigvoice
    onebigvoice Scope Member Posts: 994 Connected

    As this has been a long battle you are correct it is the necessity of being able to get what we ARE entitled to that kept me going.

    As I said it was never about the money as I have never been materialistic, but if any one winning the lottery and is stressing about the loss of friends and family, FEAR NOT……. I will be only to glad to relieve you of any stress and work out a simple contribution towards your living costs on a weekly or monthly arrangement similar to the Chancellors ideas, only she won't get any……

    MY main concern is to get a single law/assessment that is fit for purpose that gives the claimant the right access to benefits, financially or medically because that is what the NHS and Nye Bevan set up in 1954.

    We have come along way since then improving the system and improving the NHS and its access. But some where along the way certain fractions started to creep in and sections of the NHS were "Sold Off". These profit making parts were the LIFE OF THE NHS, and were used to support other less profitable areas. I don't like the terms BUDGET OR TARGET, when used incorrectly as I have always worked with both including costings.

    I have made Millions of Pounds for companies I have worked for simply by getting the EMPLOYER o value who is making them these Mega Bucks.

    Because without a multi-skilled work force, or a work force that does feel valued, you havee a work force that will turn up at the start of the shift clock on and wait for the knocking off buzzer to clock oiff and go down the pub. Its for thee Employer to find them something to do as I am on your clock….

    Simple little tweaks to the system, not reinventing the wheel but working with what you have, and seeing where the issues lie, then remedying them, or re-install sections that may have been by-passed years ago that are no longer relevant going forward, and also listening to the people on the front line of all of this.

    It does make for a happy work force, since they know they can suggest things to improve there job with out the risk of later loosingg that job because it worked well. The way you should look at it is, test the Change, review, install, review, rewrite the risk and method statements.

    It does not end their……. Give the suggestion a percentage of the save for increasing production or savings, add a bonus scheme to the production figures, and everyone want to get those figures up to gain more money and keep the WHOLE industry running at a profit.

    The system of assessment is not broken. You all use the system every time you go to the doctors or A & E. Its about how you access the system and what happens next…..

    Wr are in a situation where dealing with Issues like the NHS has become, a bottle neck situation, where one part is relying on another to advance, and then when in the next bottle, when assessed are awaiting to go to the next bottle, always a lag between assessment and treatment to the next level.

    This nevber was, since people were always entering the NHS as a career and stil do, but the time taken from training to hands on has now required contractors from Abroad to be called in to "help"

    The only thing they are helping us with is draining the easy profit making sections that require NO WORK, and sending the profits abroad for support of their system which we don't have. French and American systems rely on Private Health Care plans.

    And before anyone says anything, we also have similar schemes like Welsh Hospitals, and BUPA, which do work, but most may not know that Australia has a Private Health Care System where ALL NATIONAL INSURANCE PAYMENTS ARE MADE INTO THE "NHS" and the best care is given at source? All profits are made and put back into the system so everyone benefits.

    PROFITS, if you want to call it that is used to train staff or keep skills levels at their peak and up with the latest technology, while also paying a living wage, (I did not say basic) that can and is increased everytime you take on a new skill, or an oportunity to "try something new" or a course that you have been waiting for becomes available.

    I have wrote many programs on "How to fix the system" (any system) but, when left and not reviewed constantly when issues arrise the latest is to cut the budget or reduce the man power to compensate.

    Don't you remember the closure of 800 JOB CENTERS AROUND THE COUNTRY? How are we supposed to find work when the very people that were hired by the DWP to find US WORK LOST THEIRS.

    I am sorry I write so much but you can understand that its easy for me to write a 1000 pages on the faults of the system because its already broken, it takes a different person to write a 1000 pages on how to fix the system are I do because this is what I used to do.

  • sarah_lea12
    sarah_lea12 Community Member Posts: 442 Empowering

    It means that MPs are told to vote for what they want to go through , if they do not they get suspended from their role as an MP and cannot vote on things for 6 months or whatever the dictator decides .

    Basically it is all a sham , and the MP's that kiss butt will do as they are told regardless of how it affects people's lives .

  • sarah_lea12
    sarah_lea12 Community Member Posts: 442 Empowering

    I wrote to an MP who isn't my MP and got no reply . My MP is ignorant and does not reply .

    She is voting for the benefit reform , because she is a lap dog to starmer .

  • WhatThe
    WhatThe Community Member, Scope Member Posts: 5,660 Championing

    What does this mean pls

    It means she is not our friend.

  • Amaya_Ringo
    Amaya_Ringo Community Member Posts: 417 Championing

    I'm doing my best to not let this consume me because it will affect my work, but it does affect my energy levels outside of work - I'm having to give everything to being at work, basically.

    At the moment it doesn't affect me but that sense of something being unfair, and people misleading and lying about it to try and make it sound fair to those who don't understand…is very tiring to suppress.

    Also, the claim that autistic people are one of the least at risk here is rubbish. There's been a studied campaign against neurodivergent people and invisible disabilities in the media for the last couple of years. The battle to even get PIP as an autistic person is already extremely tough. If you've been awarded, chances are you fought through to tribunal to get there. I remember when I was going through my PIP claim (when I was switched from DLA), my academic autism mentor at the time told me that she had several other students in my position but that they had given up after an initial rejection because the stress of it all was too much for them.

    I still have residual trauma from that process and so do some of my family. I don't know if I can go through that again, if I have to, when the rules change. And I can't imagine I'm the only autistic person who has had that experience - so I think we're a long way from being safe.

  • jul1aorways
    jul1aorways Community Member Posts: 397 Pioneering
    edited April 2025

    WARNING! ⚠️ ⚠️⚠️⚠️

    PLEASE READ AND SHARE!! 👇👇👇👇

    I've been sent this notification from Disabled People Against Cuts on X, which I've copied and pasted here.

    If you are not on X I've included all the details. If you are on X I've included the link below if you are interested in reposting and commenting. 👍

    The vile & toxic DWP are sending out a horrific survey asking disabled people how they spend their PIP money

    1. DWP have no legal right to ask & you have no legal obligation to fill it in
    2. if you send a letter of opposition tell them what you think of their vile cuts

    20250419_145220.jpg

    https://x.com/Dis_PPL_Protest/status/1913518543615807498?t=iKFhpcHa8ba-Kz5VVSqFHg&s=19

  • Wibbles
    Wibbles Community Member Posts: 3,466 Championing

    How are DWP actually "sending out" these surveys ?

    Email or messaging via Twitter/X ?

  • jul1aorways
    jul1aorways Community Member Posts: 397 Pioneering

    Hi @Wibbles

    The Canary have a lot more detail about this survey, it looks like it's coming by post.

    https://www.thecanary.co/uk/analysis/2025/04/17/dwp-pip-survey/

  • jul1aorways
    jul1aorways Community Member Posts: 397 Pioneering

    WARNING ⚠️ ⚠️⚠️⚠️

    IF YOU RECIEVE A SURVEY FROM THE DWP PLEASE DO NOT FILL IT IN!!!!

    FOR MORE INFORMATION ABOUT THIS SEE BELOW!! 👇👇👇👇👇👇👇👇👇👇

    The Canary (no pay wall) has more detail on the DWP Survey asking disabled people how they spend their PIP.

    https://www.thecanary.co/uk/analysis/2025/04/17/dwp-pip-survey/

  • charlie72
    charlie72 Community Member Posts: 259 Pioneering

    How do we email the DWP about this pip survey, I want to stress my oppostition to both their refroms and this illegal survey? How dare they ask how we spend our pip money, they won't be satified until we're all in early grave, i'm soooo angry with them but it does give me another chance to write to them, if only to let them know how vile and cruel they all are!!

  • jul1aorways
    jul1aorways Community Member Posts: 397 Pioneering

    Hi @Catherine21 😊

    I loved what you said about about getting £10 for filling in the DWP Survey! 🙄

    I saw that you were frustrated in another post of yours that the MPs voting process for these cuts was so unfair.

    There has just been some more encouraging news for that vote. The government is trying to avoid a damaging rebellion of MPs as so many are unhappy about the proposals.

    It means that they might allow them to abstain from voting instead which means that these MPs won't be penalised and an abstention vote does count.

    That means that at least there will be less votes in favour of the cuts but the main thing that is good for us about it is that Labour are losing their party unity over these cuts which could undermine the government.

    A warning, an MP trys to pour cold water on these developments at the end of the article. Just because he says that he hasn't heard of any objections from other MPs, doesn't mean that it isn't happening!

    https://www.theguardian.com/politics/2025/apr/17/ministers-avoid-labour-rebellion-disability-cuts?CMP=Share_AndroidApp_Other

  • Zipz
    Zipz Community Member Posts: 4,352 Championing

    Same here. My new MP is already a PUS and has not responded. Neither have other members of both Houses, all of who claim to have a special interest in the welfare of disabled people.

  • Zipz
    Zipz Community Member Posts: 4,352 Championing
  • Zipz
    Zipz Community Member Posts: 4,352 Championing
    edited April 2025

    The survey is bring to mind last year's Green Paper in that there appears to be a shift towards our very diverse needs being "met" in any which way but direct payments.

This discussion has been closed.