How is your day going?

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  • Schildpad
    Schildpad Online Community Member Posts: 755 Empowering
    edited June 5

    Ok. So I got backdated money from esa. A handsome amount. I need to read that letter that hopefully will come this week or next week. I need some clearance here because apparently he said esa will go up. But I am worry. He mentioned 82 quid but can not be per week. I guess that will be per month.

    Normally I am not a lucky person. I am not a lucky person end off. Also need to know how much if so the esa will go up. As I said I thought it was a high amount. He mentioned it will go up. I will keep an eye..

    Weather been miserable and it does not help mentally.. anyway take care. And worry with the move to UC when it happens the amount will be well below what I am getting. I don't want to be moved to UC but I have no choice... Maybe a good lottery win will come... Bye for now.

  • Teigr
    Teigr Online Community Member Posts: 5,078 Championing

    Morning all.

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing

    Morning all

    It's 11 degrees cold and raining

    I feel very stressed

    Since my af diagnosis

    Constantly worried I can drop dead at any minute

    I'm so lonely

  • Santosha12
    Santosha12 Online Community Member Posts: 3,024 Championing

    Dear @Amberpearl,

    I'm sorry you feel so lonely and so stressed but AF will not cause you to drop down at any moment.

    Please, I urge you to ring the AF Association today; they're on 01789 867502 (think they're in Stratford-upon-Avon). That's the Helpline number for AF patients. They're open from 0800hrs to 1730hrs Monday to Friday.

    They will let you talk through your fears and concerns and they will help you.

    They're closed at weekends but if you rang at weekend and left a voicemail with your name and number then someone would ring you back at weekend.

    Tracey is the Patient Services Manager there who you'd probably speak to. I've rang to double check they're open today - they are and Tracey is on duty but is in a meeting from 1045 to 1230, so you'd get her before or after 1230 if you choose to ring.

    I hope you do ring @Amberpearl; your stress level may be greatly reduced if you speak to someone who can really help you understand it better. Anyway, take good care and I'll just leave that information with you in case you want to use it. Very warmest of wishes ✨️ 🫂.

  • Catherine21
    Catherine21 Posts: 8,342 Championing

    Oh I'm so sorry your going through this it's so hard dealing with everything I say thankgod for our fur babies they keep us going much love

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing

    Really

    I ring them after 12 30

    I have to meds from pharmacy

    It's not helping that I have an online friend in canada never met but she had very strong veiws on meds and Dr's Sge won't take any meds

    Belives in homeopathic treatment only

    The nurse told me they don't work complimentary therapies

    This so cold freind says all the medical professionals including vets are out to kill us and I cannot take the Dr's meds or I will die

    I'm. Very stressed and so scared I will die in my sleep from heart attack like mum

  • Rosie_Scope
    Rosie_Scope Posts: 7,140 Scope Online Community Coordinator

    Morning everyone 😊

    Sorry to hear you're thinking of leaving @Roughyed1485, I've popped you an email. I know it's been a really tough time for you lately so I hope you're doing as well as possible.

    That sounds promising @Schildpad! Fingers crossed that your letter comes through soon so you can get some clarity on how things will change.

    Sending you lots of love @Amberpearl. Santosha's kind response about the helpline looks really worth looking into. I'm sure they will be really helpful and might be able to put your mind at ease.

    My dad lived with AF for quite a few months on all the medications. At times it wasn't easy and the abnormal rhythm wore him out a lot, but after receiving treatment he's now back in a normal rhythm and feeling like himself again. It's pretty scary to face it all, but the cardiologists will hopefully set up a treatment plan for you and we're all here to support you in the meantime 💛

  • Schildpad
    Schildpad Online Community Member Posts: 755 Empowering

    I read a message from the chat that once you get money backdated. They will be asking for bank statements a year later. It came.a lot of money together . So I have to splash the money in a years time.

    Bad times could happen and that my money is very welcome. .and it is their fault. Anyway I will see what happen.

    But I live in constant anxiety. This should make me feel better but I am feeling quite the opposite.

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing
  • Santosha12
    Santosha12 Online Community Member Posts: 3,024 Championing

    I do hope you'll feel up to ringing them @Amberpearl. I have no doubt at all that they'll help you. Because they want to, as doctors do too. They've not trained for 7 years plus to cause us harm.

    Good luck to your friend if she believes only in homeopathic care.

    If I hadn't have had antibiotics in Dec to Feb for double pnuemonia I wouldn't be here now (sepsis). So I, personally, thank God, or whoever, for our medications and the expert care we can get.

    Homeopathic treatment didn't help my mum recover from two different cancers either - conventional medicine did though like surgery, chemotherapy and radiotherapy.

    I have no truck with people who try to persuade others of potentially unsafe treatment and interventions: no patience with them whatsoever. OK if they want to limit what they have for themselves, they can take their chance. But complete nonsense in my humble opinion (sorry, but not sorry - I don't tend to mince my words!).

    Finally, beta blockers restored my BP and pulse (which was 145 per min in Dec). And I've seen it in my nursing career (including the huge work done in evidence-based trials to get drugs approved) with very many positive outcomes including much longer lives!

    Do what's right for you @Amberpearl but I'd say please, just have an open mind and seek out the right people to advise you like cardiology, your nurses, the AF charity. Lots of warmest wishes to you and 🫂.

  • luvpink
    luvpink Online Community Member Posts: 3,211 Championing

    Morning all.

    I didn't wake up until 11 am

    I was so tired due to sleepless nights.

  • Rosie_Scope
    Rosie_Scope Posts: 7,140 Scope Online Community Coordinator

    He is indeed, he's doing really well now and has gone back to all the activities he was doing before the AF kicked in ☺️

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,406 Championing

    Congratulations everyone for reaching page 800 but a massive congratulations to @Amberpearl for being the first person to post on page 800

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing

    Oh was I. I didn't realise

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 4,732 Championing

    Roughyed, I'm sorry to read how bad you're feeling at the moment.

    Please note I said at the moment. I hope you don't leave the forum, especially now.

    I know what abandonment feels like and wanting to cut all ties. I doubt that's what anyone in your family wants you to do. Divorce is hard, I know that one too. Unless children are involved, it is very final. But family is different - you are still somebody's son, brother, uncle, cousin.

    Sending a hug.

  • pyjamaviking
    pyjamaviking Online Community Member Posts: 41 Connected

    Hello, my day is going ok. I've been really anxious, but it's actually calmed down a bit now. I went to Art group and that helped. I got really focussed on my artwork and it gave me a bit of a break from thinking and worrying.

    Popped into Lidl on the way home and got some cherry ice cream. :)

  • Rosie_Scope
    Rosie_Scope Posts: 7,140 Scope Online Community Coordinator

    Glad you've had an okay day @pyjamaviking! Art is such a good thing to do to get a break from the difficult thoughts. Really helps to take your mind off things even just for a little while. The cherry ice cream sounds delicious too, enjoy!

  • Teigr
    Teigr Online Community Member Posts: 5,078 Championing

    I fancy ice cream now,but this hotel is too far from the shops.

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,246 Championing

    I feel like a, zombie

    Struggle to keep Wake

    I'm worried it's this blood thinner I got

    I'm so fatigued