Green Paper Related Discussions

Morning Catherine hope you had a good weekend. I missed you on the forum yesterday. I don’t have MS, I have ME which used to be called chronic fatigue syndrome. I can’t pronounce the long scientific name for ME though 😂.

Yes you’re absolutely correct. I have several conditions as do a lot of us so I’m not special in any way but can only talk about my own conditions and effects. It’s like domino’s . Fibromyalgia causes pains in my legs plus cramps in hands that are getting worse. Migraines which then have a knock on affect in my arthritis in my neck and vice versa. Gentle exercise helps the muscle pain but that causes post exertion malaise . The constant stress has had a knock on effect on my anorexia ( not nerves) so I’m not eating much and nothing at all unless nagged 😂. Then there’s IBS which has been made worse by Covid. The fibromyalgia causes wide spread general pain and aches which in itself makes me tired. It also causes different pains in any particular area that can last for many months then it goes and reappears elsewhere. I don’t know if anyone else on here with fibromyalgia and/or ME has the same symptoms but I’d be interested to know how it affects others as I’ve never been on fibromyalgia or ME forums . I’ve just been diagnosed and then left and prescribed painkillers and muscle relaxants. But I imagine a lot of us on here suffer fatigue as pain and depression etc causes fatigue. Being in pain is just tiring but we get used to it and don’t realise how much we can’t do compared to others. This whole severe criteria I hope doesn’t turn out to be unfair and expect a particular symptom or the condition itself to be constant each day as even if you get a while of respite stress or over exertion can bring on a set back in any condition.

Hi Catherine,

I know but it’s the assessors, all down to luck .
Try and find time to relax Catherine, this isn’t good for our MH. Watch a good horror to take your mind off things . I get to the stage where I can’t think about it for a while so I can recharge x

If these reforms go through I hope at least the severe criteria applies to us and everyone will conditions that won’t improve . They could save money by stopping these reassessments. I was discussing this Friday and yesterday with Chiaried who explained what they think about it . If you’re up to it check out the conversation to see what you think .

Yeah I agree our conditions are severe and life long with no effective treatment or cure and I have often said that money could be saved by stopping these ridiculous degrading assessments.

I wonder how she is now . First time I got it I didn’t know what it was GP was useless. I had flare ups of bad throat every month for about 6 months. So sore couldn’t even drink water .