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  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    When i was in hospital they offered my the stop smoking stuff

    I wonder if they could offer you something similar @rubin16

    You dont have to stay stopped its just something that could get you through .

    Ive been quit over 3 months now

    Unfortunately im still using the inhalator at the moment feeling as I am @rubin16

    I should have stopped using it by now

    But im stressed etc

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Thank you for you support @rubin16

    You know at this present time i dont feel like i deserve any kindness at all .

    I am touched by the support given

    Even though i dont think i deserve it

    Hope you are so much better soon @rubin16

    Onwards and upwards for ya

  • Rachel_Scope
    Rachel_Scope Posts: 3,189 Scope Online Community Coordinator

    @rubin16 I'm sorry things are so difficult for you right now. The hospital staff should be looking after you properly and making sure you're getting some nutrition. It's appalling that the consultants are contradicting each other. Do they not have a meeting together to go through everything?

    Stay strong and speak up for yourself if you need something.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1085759#Comment_1085759

    I don't actually have an issue swallowing, its keeping things down me. As soon as anything hits my stomach I'm in agony and I feel really ill and end up being sick. i'm on anti sickness but that just stops me from being sick, the rooms still spinning like on the waves of the ocean and horrific pain. I've not been put on a drip, and my blood pressure is low 90/65

    I had 1 xray when I arrived in a&e since then consultants have been deciding for over a week what to do.

    Also another issue, becuase of my autism i'm not allowed to make my own decisions. I'm classed as vulnerable so they can veto decisions aslong as they discuss it with my care team. Which is scary.

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Thinking of you @rubin16

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Get well soon @rubin16

  • Catherine21
    Catherine21 Online Community Member Posts: 9,577 Championing

    Sorry to hear this rubin I wish you a speedy recovery

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    Okay finally I know whats happening, just managed to speak with a nice doctor. I'm waiting for some camera tests (up and down) and on waiting list. He said could happen at end of week or next week. Hes requested a dietician and put me on regular anti-sickness and to try liquids for now like soups/drinks and see how I get on. Lets hope they don't change their mind tomrrow again.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1085994#Comment_1085994

    Fluids I can handle, but anything thicker and my stomach rejects. I've asked my nan to bring me some lucosade as I need the energy.

  • Mary_Scope
    Mary_Scope Posts: 4,231 Scope Online Community Children and Family Specialists

    Glad to heat there is a plan in place @rubin16, I hope it goes okay

    Hopefully your nan will be at the hospital soon with the lucozade

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    edited November 2025

    So today has been productive, there was a cancellation so ended up having my camera tests. Good news is I don't currently have any active crohn's. Bad news is I have a bended slightly twisted colon/bowel caused by adhesions that have formed from previous surgeries. So could mean I have to have surgery to fix it. I'll get the full picture tomorrow when consultant comes but atleast were getting somewhere.

    I've also been put on regular anti sickness and on just a liquid diet for now. but touch wood I have managed to keep abit of soup down me.

  • Rachel_Scope
    Rachel_Scope Posts: 3,189 Scope Online Community Coordinator

    That's sounding positive @rubin16! I hope you don't have to go through anymore surgery, but I'm really glad you've managed to have some soup.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 5,476 Championing

    Rubin, I have just read about nicotine lozenges which are NHS approved. They come flavoured in 1mg doses. Easier still would be patches - also NHS approved.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1086290#Comment_1086290

    Thanks for this, my nan wheeled me out for 5mins yesterday so I managed alittle vape and fresh air before pain set in again. but if I need an op i'll prob ask for something as it'll be impossible to move afterwards for abit. i'll find out today whats the next plan is.

  • Santosha12
    Santosha12 Online Community Member Posts: 3,775 Championing
    https://forum.scope.org.uk/discussion/comment/1086165#Comment_1086165

    I've not been on for a while (ill) but seen that you're in hospital @rubin16. I am so sorry but pleased the Crohn's is not active. Good luck today with the Consultant - I'm very glad you've been able to at least have fluids; most pleased that you're being kept updated and informed properly as you should be. And glad the 'dreaded' camera procedures are done now.

    If you end up needing surgery, have you considered the nicotine inhalatior? (Little white thing /nothing to exhale though like a vape but at least you get nicotine).

    Thinking of you and wishing you well and all the very best ❤️.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1086316#Comment_1086316

    Thankyou for your kind message. I'll might see what what options they have but kinda abit anxious this morning anticipating what the next plan is.

    I'll keep you all updated.

  • Zipz
    Zipz Online Community Member Posts: 4,349 Championing
    edited November 2025

    @rubin16 Your situation is troubling. If you can't cope with Fortisips asks about other products of this nature.

    Also, could you manage a thin, fortified yoghurt or fortified ice-cream?

    Drink as much as you're able. Even plain water will keep your body going for when they try something that helps.

    Blessings, Zipz

    PS. I don't know where you are but if things remain unsatisfactory ask/insist on transfer to a cerebral of excellence in the field of most concern.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1086325#Comment_1086325

    To be quite honest with you I never even touched a cig until I was 28. It started becuase I was in agony once in hospital and nothing was helping, and a family friend wheeled me out briefly and gave me some **oregano mixed with tobacco which made me forget the pain for hours. Since then I used to smoke it ocassionally, but having it mixed with tobacco became me craving just something to smoke, which became cigs now and then to eventually stopping and just having a vape instead.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1086323#Comment_1086323

    Thanks Zipz,

    Things actual happened for once yesterday, so fingers crossed something gets done soon. The consultants should be around soon so hopefully I get a better idea.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1086338#Comment_1086338

    I went to Scotland for the first time last year with my nan, I'd always wanted to go considering i'm half scottish from my mums side. Absolutely beautiful country and round every corner was a breathtaking view and stunning scenery. Your lucky to live there.

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