Hello again

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Comments

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    I thought i'd try 1 piece of toast this morning as i'm so hungry. 10mins later I threw it back up again and nurse had to come running with anti-sickness. Day 15 with no food.

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,799 Championing

    Your welcome @rubin16

    Most nights it takes me ages to sleep

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,799 Championing

    We are all wishing you well @rubin16

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    The consultant just came round and assessed me again, hes going to put me on a drip. But has no idea why my body is refusing food. He has to run lots of tests on me to check for things and see if i'm intolerant to anything. He also said they have referred me to the dietician a few times but they declined the referal as you have to meet certain criteria i.e try all drink options. He said now we have exhausted those options they should come and see me tomorrow.

    He also said about that enema thing that it shouldn't be a concern as that part of the bowel is redundant and not being used as I have an ileostomy, and if some crohns is flaring somewhere where they missed then the infusion of ustekinumab should calm it down again and sort out.

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    Wishing you so much future health and happiness, take care. Thanks for your messages

  • Trevor_PIP
    Trevor_PIP Online Community Member Posts: 1,225 Championing

    Reads like somethings are about to happen which is good news. Hope it all goes well as you need a bit of luck now!

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,799 Championing

    Good luck with all the tests @rubin16

    Everyone is thinking of you

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    Fingers crossed. And thanks for all your messages so far, means alot to just get things off my chest that is happening and knowing there's people who care and listen.

  • PracticeWotUPreach
    PracticeWotUPreach Online Community Member Posts: 70 Contributor

    keep us updated, fingers crossed you will get some answers. Hope the drip helps

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    Thanks for your message. I'm on the drip now continually for 12 hours then they replace it, hopefully it perks me up abit. Fingers crossed. I'll keep you all updated along the way, i'm also using this to keep a record of whats happening.

    It does mean alot that you guys care and listen, so really thankyou.

    Take care.

  • PracticeWotUPreach
    PracticeWotUPreach Online Community Member Posts: 70 Contributor

    It’s completely understandable that you want to keep a record of everything, and I’m really glad you feel listened to — you’re definitely not alone here.

    By the way, if you’d like, we can ask the admin team to change the thread title from “Hello Again” to something more specific, so others can quickly see you’re currently in hospital and pop in with more support. Just let me know and I can request it for you, or if you prefer, you can ask them yourself.

    Take care and rest as much as you can. I need to get going now as I’ve got a few things to sort for work tomorrow, but I’ll check back in soon. 

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    You could do that I don't mind but itwould probably make things easier to find. It just wasn't my thread to begin with and just kinda ended up putting everything here so it was in one place.

    Thanks.

  • Santosha12
    Santosha12 Online Community Member Posts: 3,503 Championing

    I'm so glad your consultant has seen you today Rubin, and that a dietician might come tomorrow. I hope the drip perks you up too in the meantime and I'm relieved you're on that. Thinking of you and sending my very, very warmest regards to you.

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing
  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    I've had the best nurse today who has been looking after me, shes been getting medication for me right on time, got the consultant to see me in the morning, does anything i've asked for and been checking on me to see if I need any meds or anything. Really does make a difference when you have a good nurse.

  • Zipz
    Zipz Online Community Member Posts: 4,337 Championing

    All the best for the coming days, @rubin16 The consultant and dietitian are going to be working hard. In fact, I bet reading your notes has disturbed their weekend plans. Get well! Blessings, Zipz

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    Thankyou, I'm more hopeful now. I was panicking this morning hopefully things happen tomorrow as I just want to be well and go home.

  • Trevor_PIP
    Trevor_PIP Online Community Member Posts: 1,225 Championing

    Thanks and no problem. We do care and hopefully now you have a good nurse and doctors/dieticians are to arrive, things will get better for you! You are keeping the forum alive, it's quiet on PIP the last few days! Keep posting!

  • rubin16
    rubin16 Scope Member Posts: 1,433 Championing

    haha thanks, I will give everyone an update again tomorrow once i've seen the doctors again and hopefully the dietician shows. Have a good rest of your evening.

  • xodza
    xodza Online Community Member Posts: 213 Empowering
    edited December 2025

    good morning to everyone hope all is well my parcel arrived shortly did not manage to cancel order so will try sell Robotic dogs ripping off company when told them order three instead of one by accident won’t just send one too effort send back as find a o in o printer shop to do there address label and purchase box send two dogs back