Hello again

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  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Your welcome @rubin16

    A better day than yesterday

    Ended up going to A And E again last night cos awful chest pain

    Luckily it wasnt anything awful

    Just needed pain relief

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1087069#Comment_1087069

    Glad you're okay, its scary when we don't know whats happening to our bodies. I hope you're feeling better now. Take Care.

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Your support , kindness and time is appreciated @rubin16

    Get well soon

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    *Warning - TMI

    So I had that camera test 3 days ago, and before I had it I had an enema. Well for the past couple of hours with that horric burning pain, I've been feeling I need the toilet. Bare in mind that I have an ileostomy and rarely feel I need the toilet. Anyway I kept trying to go toilet for a few hours until finally I ended up passing some of the enema I had 3 days ago. The burning pain has subdued now, but I told the nurse. She looked at me and went that's not right it should take 15mins, i'm going to get the doctor.

    So now i'm waiting for the doctor, but I feel better now the burning pain has gone. now I just have my previous ache pain.

  • Trevor_PIP
    Trevor_PIP Online Community Member Posts: 1,224 Championing
    https://forum.scope.org.uk/discussion/comment/1087103#Comment_1087103

    The effects of the enema takes 15mins I gather. At least you feel better! 3 days is a long time for a response!

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    You are really going through so much @rubin16 .

    Your strong you are gonna get through this .

    I wish u wasnt

    I really do

    Im hoping and praying for better days ahead

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Quick recovery for u @rubin16

    That is what i wish for you

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    I fell asleep and a nursing assistant just literally woke me up asking if I want the light off….As soon as I woke, pain hit and she had to get the nurse to give me painkillers again. Still waiting for a doctor, nurse said she put a request but might be morning now.

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Thinkin of you @rubin16

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Your in everyones thoughts

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1087141#Comment_1087141

    Thanks, didnt think anyone would be awake. Thinking of you too.

  • Trevor_PIP
    Trevor_PIP Online Community Member Posts: 1,224 Championing
    https://forum.scope.org.uk/discussion/comment/1087140#Comment_1087140

    Hopefully the doctor turns up. Good you are getting some sleep!

  • xodza
    xodza Online Community Member Posts: 213 Empowering

    good morning to everyone cold start can notice difference in money have put on smart meter gone up a lot try too wear thicker clothes help bit

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    I thought i'd try 1 piece of toast this morning as i'm so hungry. 10mins later I threw it back up again and nurse had to come running with anti-sickness. Day 15 with no food.

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Your welcome @rubin16

    Most nights it takes me ages to sleep

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    We are all wishing you well @rubin16

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    The consultant just came round and assessed me again, hes going to put me on a drip. But has no idea why my body is refusing food. He has to run lots of tests on me to check for things and see if i'm intolerant to anything. He also said they have referred me to the dietician a few times but they declined the referal as you have to meet certain criteria i.e try all drink options. He said now we have exhausted those options they should come and see me tomorrow.

    He also said about that enema thing that it shouldn't be a concern as that part of the bowel is redundant and not being used as I have an ileostomy, and if some crohns is flaring somewhere where they missed then the infusion of ustekinumab should calm it down again and sort out.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing
    https://forum.scope.org.uk/discussion/comment/1087204#Comment_1087204

    Wishing you so much future health and happiness, take care. Thanks for your messages

  • Trevor_PIP
    Trevor_PIP Online Community Member Posts: 1,224 Championing
    https://forum.scope.org.uk/discussion/comment/1087211#Comment_1087211

    Reads like somethings are about to happen which is good news. Hope it all goes well as you need a bit of luck now!

  • Strawberry1
    Strawberry1 Online Community Member, Scope Member Posts: 8,875 Championing

    Good luck with all the tests @rubin16

    Everyone is thinking of you

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