Is Scope Disability Friendly anymore?
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I deleted all fb tiktok instergram i go on youtubetiktok was the worst for me always scary stories
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YouTube can be pretty toxic, hence the rare times I upload my own content, I turn comments off by default, especially if I'm physically in it.
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I use facebook where I never encounter any negative issues.
I have seen the threads here on scope which have been quite unpleasant at times and uncalled for.
For that reason I have not engaged in particular topics, especially politics for fear of being subjected to ridicule because I disagree with the fact that some politicians have been insulted based on perception of their physical appearance and their supporters have been labelled with the most unessacery derogatory insults.
This is not grown up debate and it can create unnecessary tension rather than allowing healthy discussions in an environment where we can all feel safe to engage with others who accept differences of opinion and agree to disagree in a respectful manner.
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Hi all, we've removed a couple of posts this evening as they were directed at another member, or spun off from that discussion.
We want to be able to keep this discussion open but if posts continue to be made pointing fingers or assigning blame we will have no choice but to close it.
If anyone else is looking to share feedback, please avoid naming or criticising other members in this thread. If you have concerns about specific interactions, report them directly so we can review them fairly.
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I honestly hope that this thread stays open, as, even tho not everything has been positive, I really think members have tried to explain to the best of their ability issues they've identified.
It seems like we all want this to work, so let's work together. I also appreciate Adrian's input about 'some' issues. The difficulty may be in part how we word things, or come across; perhaps that sometimes a difficult one, but, as had been said by both Adrian & our members, the main thing is that we should be mindful that we address an opinion/the matter being discussed, & not another member, should we disagree.
Like @OverlyAnxious - I've been around since 2019, & tend to respond where I hope I can help with something factual, as others do. Quite honestly I'm amazed at the breadth of knowledge some of our members have. This is so good, & hopefully helps others.
Adrian, sorry but I take issue with saying that perhaps members have been hurt; it can be way more than that; members have stayed away (& been missed), & we don't know how many members we've lost, or never joined due to the content they've seen. Members have been more than hurt, they feel like they don't want to always engage on a forum that is for them. Minimising the effect of such words perhaps doesn't help.
It must be so difficult to act preemptivily, & I know you try, but, may I say as someone who takes a long type to type due to my problems, that it's more than frustrating when your comments disappear due to the action of others.
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Me thinks ya all need a bit of heliotherapy
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I think we need to remember that all members express themselves in different ways. No judgement should be made as to how they do this.
As a disability forum we should accept different reasons for members writing the way they do. It does not make their contributions any less valued.
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Sometimes it is something as simple as leaving certain words out that change the tone of a post.
Like " This is really well put, and it reflects what many members have been trying to express" implying they did not get it quite right.
Whereas " This is really well put, and it reflects what many members have been expressing" is more inclusive.
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All i know from my heart is i wouldnt have coped in my darkest anxiety ridden thoughts withoit this forum i was running to cmht phoning my Doctor screamimg every bit of advice comfort care really really have no words to express and will never forget Albus how he helped us all this more than a forum to me and im sure many others
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We all have different communication styles, or put another way, we have different communication limitations, and different communication alternatives to work around our lifelong communication limitations.
Currently here in the UK these issues are not explained in great detail by the so called medical, and health professionals who should be trained and qualified to explain these issues, and explain the types of support and understanding some may require.
I have Auditory Processing Disorder the listening disability which is the underlying cognitive cause of my dyslexia symptom, and my problem of remembering the right words to use when trying to explain a topic (there are many other issues as well). Auditory Processing Disorder can be one of the multiple issues which can combine as part of an individuals Autism. I have a a Facebook Auditory Processing Disorder support group and one of the members is autistic and sometimes her comments are considered by other members as being rude, but it is her way of communicating her feelings.
So we need to understand the different communication options each individual may have and their possible communication limitations.
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To be fair mw123 has been so supportive of me mw has taken time to break down topics i didnt understand noring was ever to much for mw and me personally saved ne hours of endless worry i never used to join in forums as my spelling grammar awful makes me feel like i look unintellegent but i have to say ive never felt judged or made to feel awkward if anything i was given reassurance for me this is first time ever if i tried to join in on social media i get some spiteful comments bit on here i felt able to expalin my dyslexia as you can see ive done over 9 thousand posts !!!! Thats insane for someone who dislikes txting writing exc insane how many posts
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I have been is a similar situation most of my life, until I found out about Auditory Processing Disorder, which is the cause of both my dyslexia and my specific language impairment, and in my 20s I was diagnosed as having a Personality Disorder, which is really a symptom of my lifelong Auditory Processing Disorder. Back in the 1970s UK medical professionals did not know about Auditory Processing Disorder, which international research and technology has explained over the last few decades.
I did not know until my early 50s that i had become a visual spatial learner from birth to work around my lifelong auditory limitations. I think in pictures, diagrams, charts, and practical demonstrations, and I have real problems with verbal instructions, which I tend to fail to understand.
When it come to using text I have an computer word processer which I use to type and spell check my no text based information. so that for me each new sentence start on a new line, and I also alternate the font colour between green and blue between the sentences. I find this helps me read research papers, as i can also put new to me words and terminology in a red font colour so that i an look the word up and then type in an online explanation.
Most of my local community have no understanding of my lifelong communication limitations and many can become rude and nasty, which is why I tend to be house bound the avoid any disability discrimination.
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I never heard of this until i read all your posts i will speak to my psyctrist i have dyslexia but reading what you written makes so much sense can i ask do you just skim posts as i read so fast i dont take anything in have to read over and over i will speak to my psyctrist as she also has adhd and is dyselxic me too ive avoidef anything to do with writing or having to retain information was awful when i was working awful i remmeber i was asked to staple a news letter togeather and make lots of copies i just stood there clueless i felt sick to the stomach i just couldnt get my head around what order they had to be in so i just grabbed all different sheets and stapled them togeather and phoned in sick the next day this was constant in my working life i always did care work and honestly until i joined scope i really didnt relize how much dyslexia affected me i always thought was other mental health issues
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Hi Catherine21
There are three possible causes of the dyslexia symptom :- Auditory Processing Disorder, and or Visual Processing Disorder, and or Attention Deficit Disorder.
The initial key research papers are :-
Cognitive subtypes of dyslexia are characterized by distinct patterns of grey matter volume 2013
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147248/
And the key research papers for me were
Unstable Representation of Sound: A Biological Marker of Dyslexia 2013
https://www.jneurosci.org/content/33/8/3500.full
and
For Reading Development, Auditory Processing Is Fundamental
and below is my graphic
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Wow so so much when my mum was carrying me she nearly lost me at 5 months she had to have complete bed rest im wondering if that could have caused develomental issues ? I will take a good look at this thankyou very much
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I expect I will get shot down in flames but what has these past few comments to do with the thread title people complain about others hijacking threads then do the same
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No your quiet right to point this out i will be more mindful and dolfrog was responding to my questions that i asked but yes i will be mindful and not sidetrack on posts again thankyou micheal57
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Thanks for treating each other with respect here, that's lovely to see. This seems to have come from chatting about communication differences which is still relevant to what was being discussed in some ways. It's great to see you sharing experiences with each other and copying over some information that might help others understand.
That said, I think everyone's recognised we are at risk of getting a little off topic now, so it would be good to get back to the main theme of this discussion again from now on.
Thanks for all that you've shared so far, it's been good to read through everyone's thoughts and experiences.
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