Mum to 18 year old son with Epilepsy, Severe LD and Autism. Lost in the system.

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toffeegirl
toffeegirl Online Community Member Posts: 1 Listener
edited January 2018 in Families and carers
Mum to 18 year old son with Epilepsy, Severe LD and Autism. Lost in the system. Very limited help getting to feel like we will need some help in the future. Married and a nurse working in the community.  Advice is always appreciated and happy to offer any assistance. Xxx

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  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @toffeegirl

    Welcome to you this afternoon!!

    It’s great to meet you today!!!!

    I have posted some info for you below:

    https://www.scope.org.uk/support/families-hub

    Please please come back to me if you have got any questions/Problems ?????
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @toffeegirl
    Welcome to the community.

    What sort of assistance are you looking for? Education? Social Care? Let us know a little more so we can see if we can help.


  • [Deleted User]
    [Deleted User] Posts: 728 Listener
    The user and all related content has been deleted.
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    The National Autistic Society gives some great advice and support.
  • ParentingAdvisorVikki
    ParentingAdvisorVikki Online Community Member Posts: 45 Connected
    toffeegirl said:
    Mum to 18 year old son with Epilepsy, Severe LD and Autism. Lost in the system. Very limited help getting to feel like we will need some help in the future. Married and a nurse working in the community.  Advice is always appreciated and happy to offer any assistance. Xxx
    Hi! 
    Speaking from experience, a lot of us fall through the cracks. 
    Does your son have an EHCP?
    Is he still in education?
    What help do you need? what area are you in and what services have you already tried to access?
    If you want to shoot me a message over I can see if I can point you in the right direction for some more help :)

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