Hi, my name is pixie_nan_67!

pixie_nan_67
pixie_nan_67 Online Community Member Posts: 1 Listener
in Start here and say hello!
Hello, I wanted to join this group as I am disabled and do not get to talk to anyone near me who is disabled too.I have a very rare genetic disease called PXE for short. it affects all my internal organs including my veins and arteries and stomach and eyes too. I would love to chat to someone who is disabled too.I can no longer walk very far and use a stick and a walker but we think soon I will have to get a electric buggy..

Comments

  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    Hello @pixie_nan_67 Pleased to meet you welcome.

    Thank you for joining and thank you for sharing.

    There will be plenty of members who love to talk to you.  I know I am one anytime.

    We are a supportive community. Friendly care and share.

    Lots of information, advice.  

    Ask the community anything some one will know.

    Please take care.

    @thespiceman
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @pixie_nan_67
    Welcome to the community! Would you mind telling us a bit about yourself?
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Welcome to the communtiy @pixie_nan_67 :)

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