Hi, my name is Obadiah!
Options
Obadiah
Community member Posts: 7 Listener
I'm already signed up as a Disability Gamechanger. I have Dilated Cardiomyopathy and Arthritis.
Comments
-
Hi, I hope you keep well ?
-
Disability Gamechanger - 2019
-
Erm? I'm 70, diagnosed with Dilated Cardiomyopathy at 58, having been retired by BT at 55. Became a House Husband as my wife became a Deputy Headteacher. Son of a Pharmacist, ex St John Ambulance, now mainly a House Husband, but try to keep up with matters medical and technical.
-
I apologise, I have not heard of Dilated Cardiomyopathy before, would you mind explaining what this is?Disability Gamechanger - 2019
-
Sorry! Dilated Cardiomyopathy is a weakness in one of the chambers of the heart. Symptoms are things like breathlessness and lack of energy. I have an implanted pacemaker to regulate my heart.
-
I have just searched around the forum and it appears that you are the first member to mention Dilated Cardiomyopathy, so I looked elsewhere and found CareiomyopathyUK which may be of use to you.
Do let us know if we can be of any assistance!Disability Gamechanger - 2019 -
Thanks! Been a member of that group for years. As son of a pharmacist, long term first aider, ex St John Ambulance I’ve done a huge amount of research.
-
Welcome to the community @Obadiah
Scope
Senior online community officer -
Thanks!
-
I like your name, is that your real name? I met a child once called cornelius, I like to meet people with names unusual like mine ? what is a disability gamechanger?
-
No, I’m really a rather boring John. Obadiah was the name I adopted when I used to do English Civil War re-enactment. Disability Gamechanger is a new campaign started by Scope for people who are prepared to help raise the profile of disability and help to make people understand and accept us.
-
Oh haha! It’s still a good name, the bad guy on iron man 1 is obadiah; but that sounds good, I think there is a long way to go in getting people to recognise the barriers faced with disabilities, and also the amount of strength/effort it takes to function within the parameters of every day society, especially when you’re not visibly disabled, some of the looks, questions and comments I personally get are very invasive and suspicious. It doesn’t help either when being autistic I find it very difficult to explain it, and having my particular mental health issues am inclined to be terrified of people thinking I’m a mess that cannot cope!
P.s sorry for going on -
No problem! My wife teaches special needs, so I know the world of disability quite well, apart from having heart failure myself! It would be a very sad world if we couldn’t support each other, as well as trying to explain what our world is like.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions