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karen01
Community member Posts: 2 Listener
Hi everyone, I hope everyone is managing as best as possible.
I was wondering if any one experienced the same devastating situation.
I recently advised PIP that I have been diagnosed with pots and fibromyalgia and my health had deteriated further .
I had to attend another assessment and the assessor totally disregarded everything I stated and didn't even put i have to walk with stick because of leg pain and hypomobility in joints and balance issues. I had been discharged from hospital 2 days before with pneumonia and still having breathing issues.
I'm so devastated and it's hard dealing with pots everyday and constantly feeling your going to pass out let alone the pain with fibromyalgia. ..don't go anywhere unless it's hospital appointment and have to have someone with me.
.I have welfare adviser appealing this for me, just wondering if anyone can give me hope.
I was wondering if any one experienced the same devastating situation.
I recently advised PIP that I have been diagnosed with pots and fibromyalgia and my health had deteriated further .
I had to attend another assessment and the assessor totally disregarded everything I stated and didn't even put i have to walk with stick because of leg pain and hypomobility in joints and balance issues. I had been discharged from hospital 2 days before with pneumonia and still having breathing issues.
I'm so devastated and it's hard dealing with pots everyday and constantly feeling your going to pass out let alone the pain with fibromyalgia. ..don't go anywhere unless it's hospital appointment and have to have someone with me.
.I have welfare adviser appealing this for me, just wondering if anyone can give me hope.
Comments
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I would rely on what your advisor suggests. You are lucky that you have found someone to help you - many fail in that quest.
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Hi,It's always very risky requesting a change of circumstances for a worsening condition. Unfortunately, no one can tell you your chances of a decision going in your favour.You have the best possible help with a welfare rights rep so your chances are higher. Good luck.I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
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Thank you so much
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