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In need of support

karen01karen01 Member Posts: 2 Listener
edited January 2019 in PIP, DLA and AA
Hi everyone, I hope everyone is managing as best as possible. 
I was wondering if any one experienced the same devastating situation. 
I recently advised PIP that I have been diagnosed with pots and fibromyalgia and my health had deteriated  further .
I had to attend another assessment and the assessor totally disregarded everything I stated and didn't even put i have to walk with stick because of leg pain and hypomobility in joints and balance issues. I had been discharged from hospital 2 days before with pneumonia and still having breathing issues.
I'm so devastated and it's hard dealing with pots everyday and constantly feeling your going to pass out let alone the pain with fibromyalgia. ..don't go anywhere unless it's hospital appointment and have to have someone with me. 
.I have welfare adviser appealing this for me, just wondering if anyone can give me hope. 


  • YadnadYadnad Posts: 2,856 Member
    I would rely on what your advisor suggests. You are lucky that you have found someone to help you - many fail in that quest.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    It's always very risky requesting a change of circumstances for a worsening condition. Unfortunately, no one can tell you your chances of a decision going in your favour.

    You have the best possible help with a welfare rights rep so your chances are higher. Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • karen01karen01 Member Posts: 2 Listener
    Thank you so much 
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