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My little girl has something called SB - a birth defect of the spin
curiousmom1996
Posts: 35 Member
I have two children. I’m twenty one years old now. I live in a small apartment with my two children and my partner too. My little girl has something called SB. Basically speaking it’s a birth defect of the spine. Ever since the diagnosis day I’ve been busy learning all about how disability changes people and what it means to be included in society as well. I hope to post on here when I get a chance to. My two mini mischief makers are proficient in keeping us on our toes constantly as well.
Replies
Scope community team
Welcome to Scope's community! It's great to have you here. Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!
If you need anything, just let us know.
Specialist Information Officer and Cerebral Palsy Programme Lead
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Welcome! How are you today?
Ami
Good Evening & Welcome 🙏🙏
It’s great to meet you today 😇😇😇😇
Please please let me know if there’s anything that I can help/support you with???
@steve51
Welcome to the community, I have moved your post over to the Navigate section where you might be interested to hear more about their service?
Navigate provides one-to-one online and telephone support to parents who have a child going through diagnosis, or whose child has received a diagnosis of a disability, or acquired an impairment within the last 12 months. The service is available to parents living in England or Wales. Navigate advisers will work with parents for six weeks, giving emotional and practical support, as parents start their journey as a parent of a disabled child.
Senior online community officer
Here is the link to the navigate page so you can see if this service may be of use to you.
As Sam has explained we offer emotional support and practical support to parents who are going through the early months of diagnosis or on the pathway to diagnosis.
I hope that the Navigate service could be of use to you
https://www.scope.org.uk/navigate
good luck
Kate