Fibromyagia

Hi debbiedo49.
 I agree we are pain warriors. Keep going and I hope the injection helps when you get it .I have had difficulty sleeping . I am seeing a different GP who is trying new medication. I am being weaned of citalopram and starting a new antidepressant which helps you sleep it is called Mirtazapine. I have only took a few so far and sleep is definitely better. But have been very groggy in day time. I  think this will get better given time.
 Take care and good luck.

Thank you yes sometimes the pain is awful. I had mirtazapine for my first antidepressant but it made me so groggy ? I couldn’t function or drive. I’m on citrapine now and it a bit better. X

I got my steroid injection last Friday. So far it’s not made much difference ?

My steroid injection hasn’t helped much. 

What's wrong with your armpits @WF2k? I get pains when my bra cuts in after a couple of hours just on edge of my armpits

I hear from and read other peoples experiences and I am amazed - I was diagnosed with fibro & chronic fatigue by a rheumatologist in the hospital (referred to him due to swollen knuckles etc - saw him twice - initial appointment then the diagnosis appointment). Rheumatologist immediately discharged me back to my GPs care - I was(am) prescribed Gabapentin, started on a low dose and it was titrated up - taken off any/all prescription painkillers, given voltarol emulgel for the pain and pretty much left to get on with it. its been a couple of years now and I am just slowly getting worse.

In some ways I am better because I have learnt my limits, but in others it is just getting worse and worse. My mobility absolutely sucks, I am pretty much housebound and have been for the last year or so, as its too painful/exhausting to walk further than/longer than 5 minutes or so. It takes me almost 3x as long to get somewhere as it used to. I have a walking stick and have just purchased a rollator (walking frame thingy). I did ask my GP to be referred to physio/anyone who could help me with my mobility problems and hopefully suggest things to make it better. To which I was told 'we do not refer for this anymore'.

I was already on major antidepressants before this so they have not been increased at all, the only addition to my prescriptions has been the Gabapentin which I am now on 900mg 3x daily. 

I envy everyone who has gotten further help and support from their healthcare providers. I have just literally been diagnosed, discharged and left to it! I am at a loss on what to do next. I was supposed to go for a blood test towards the end of March, but I have been unable to get there yet due to mobility and lack of money to get a taxi (its not far but have been put on universal credit so we are permanently skint).

@Firefly123 I get all of that to varying degrees and I do think with the pain and debilitation of fibro something is going on that weakens the muscles. What annoys me is I have self referred to physio and they say we do not treat fibro. They do not have the knowledge. I'm asked what can they help me with, what one thing and I get 4 sessions including the assessment. So the other thing is that I am quite flexible, or was, for the tests they use as standard. So they say oh my you are strong or you are flexible when's every other area I am not. So their standard tests suck for fibro. For past 6 months I've hard horrendous neck and shoulder pain. I was told to go straight to physio. They said I had a muscle spasm and a complicated name for the muscle of the neckband shoulder. I was given no instructions or meds for pain apart from use heat pads or go swimming. Then I went back to gp who said steroid injections and increase pain meds. That's not working. Now I'm waiting around 2 months now for an appointment for an ultrasound on my shoulder. Which I'm not holding my breath for on the NHS. It's a disgrace. I know I'm ranting but if I could afford private health care I would definitely pay for it.