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Fibromyagia

Hi for 4 months now I can't lift my arms as well as the chronic pain I can't seem to find any mention of this connected to fibromyagia as I've only recently been diagnosed and this pain has taken over my life. Im wondering has anyone else experienced this. I went from being a carer to 3 young adults to not even being able to dress/undress myself.
Thanks
Thanks
Replies
I can understand what you mean by psychologicaly as the longer it's gone on the more worry and stress it's been causing. As I'm used to being so independent and having to ask my daughter to help me dress and undress is so frustrating.
I see a specialist tomorrow I guess to come up with a care plan my pharmacy will start giving me my meds in blister packs as I'm on so many for other health problems at the minute I'm marking an x on my hand sounds crazy but it's like my brain is asleep and I can't remember if I've taken them or not.
But yes your right we find ways of managing as there is no other choice.
[email protected]
So I guess it's about learning that I can't do what I used to and start finding ways to manage what I can do
I agree we are pain warriors. Keep going and I hope the injection helps when you get it .I have had difficulty sleeping . I am seeing a different GP who is trying new medication. I am being weaned of citalopram and starting a new antidepressant which helps you sleep it is called Mirtazapine. I have only took a few so far and sleep is definitely better. But have been very groggy in day time. I think this will get better given time.
Take care and good luck.
Just catching up with you all - having had a pretty horrendous pain week myself! It is so great to see the support that groups like this can offer each other and I hope that you will find this, Emma.
I take pregabalin - similar to gabapentin - and have used for sleep amitryptilline and mirtazepine in the past, but the grogginess was a huge problem for me.
Finding a GP who is understanding makes such a huge difference - along with a pain clinic and some the pain courses where you can meet up with others.
Debbie - I am a non smoker but use a CBD vape with some success, particularly for spasms. The cartridges are quite pricey but my first has lasted me 8 months - although I guess I might not use it as much as others. I am also currently trialling a CBD liniment which is sprayed directly onto the skin.
Good to meet you all fellow pain warriors!
Claire
Chronic Pain Advisor
Scope
[email protected]
scope.org.uk
Make sure you look after yourself and go go to your g p x
One other thing, do you have any problems with your armpits?
In some ways I am better because I have learnt my limits, but in others it is just getting worse and worse. My mobility absolutely sucks, I am pretty much housebound and have been for the last year or so, as its too painful/exhausting to walk further than/longer than 5 minutes or so. It takes me almost 3x as long to get somewhere as it used to. I have a walking stick and have just purchased a rollator (walking frame thingy). I did ask my GP to be referred to physio/anyone who could help me with my mobility problems and hopefully suggest things to make it better. To which I was told 'we do not refer for this anymore'.
I was already on major antidepressants before this so they have not been increased at all, the only addition to my prescriptions has been the Gabapentin which I am now on 900mg 3x daily.
I envy everyone who has gotten further help and support from their healthcare providers. I have just literally been diagnosed, discharged and left to it! I am at a loss on what to do next. I was supposed to go for a blood test towards the end of March, but I have been unable to get there yet due to mobility and lack of money to get a taxi (its not far but have been put on universal credit so we are permanently skint).
A new thing ive been getting lately is my knees sticking and is very painful trying to straighting. My legs. Our burning in my feet like they are on fire.
Been waiting to get better but its been considerably worse for months now so im sort of accepting what i can and cant do.
But yes i get them saying so what can i do for you well hopefully something seems they just say all is to do with the fibro or my latest diagnosis of osteoarthritis so should just suffer.
Scope community team
Also, while I don't know if you'd get it, have you thought about applying for PIP based on your reduced mobility? You can check out the descriptors here and see if you think any would apply.
Scope
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