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I am worried about my pip assessment and suicide question

Hi, I have a pip assessment next week, this is my second one as i was turned down two years ago. I did not appeal and did not bother to re-apply until one of my health professionals told me to do it.
I struggle on a daily basis, and i have to be helped to have a bath, and to go up and downstairs. I struggle to do a lot of things including dressing myself, and i cannot cook. Due to my health condition i do get depressed and i was disaognised with ptsd from an accident i had. I did not put that on the form last time and did not put that on the form this time, and i did not put down that i have panic attacks. I received four points in total at my last assessment.
During my assessment i was asked to do a couple of things which left me in pain for a week after my assessment which resulted going to the doctor to get stronger painkillers. I am worried that they may force me again to do things that put me in pain. I had tears at my last assessment due to the pain.
They also asked me two years ago due to me saying that i do get depressed because of my condition if i was suicidal. I told them know and they asked me a few times. They asked me if i had ever thought about taking my own life or wished that i was not on the planet. I am not sure why they asked me this. Although i told them no, the truth was that some days i do wake up wishing i was not here due to the level of pain i go through on a daily basis and how my life has changed. I have never though considered taking my own life, although sometimes before i go to sleep i wish that i did not wake up the next day. Does anyone know why they would ask me those questions and if i should tell them the truth or answer like i did last time.
And, can i refuse to do anything that will put me in pain. I did try last time but was forced as they said i had to do it as part of the assessment.
any advice would be great
Replies
If you don't consent then say no.
I'd suggest giving an explanation as to why you don't consent, although this isn't necessary...
Happyman
I read this it helped hope it helps you
Bit of background; I was a PIP Disability Assessor for a while this year, until I decided that I couldn't work within the system with a good conscience, and left. I witnessed DA's who were trying their best, mostly, to help people with their claims. They (and I) were hamstrung both by our immediate employers, and a system (whether by accident or design) that discriminated against claimants with certain conditions. In the spirit of the release of 'I, Daniel Blake', which isn't about PIP but other failures of the benefit system, I've decided to give some general advice to those looking to claim PIP.
Firstly, let's look at initially making the claim. I would say the most vital point is this; PROVIDE EVIDENCE. The way that the claim form/questionnaire is worded implies that the DWP/ATOS/CAPITA or whoever will chase letters from GPS, specialists etc to back up your claim for you. In my experience, this doesn't happen. The onus is on you to provide this information, although it would be very easy to assume the opposite. Some photocopies of a recent prescription, letters detailing diagnoses and appointment dates, and evidence of secondary care involvement (especially people with mental health conditions) provide good evidence; if you haven't provided anything, then the DA has to go mostly on that short assessment with you. You may be horribly unwell or disabled for 5 days a week, if you're having a 'good day' on the assessment however, then your claim is in trouble. Evidence, Evidence, Evidence; I can't stress that enough. Don't let the DWP have the easy option; the decision they make is heavily dependent on the report written by the health professional that assesses you. The decision maker at the DWP has no medical qualifications of any sort.
If you have disabilities that cause you to have problems getting out (especially severe MH conditions), ask for a home assessment. The way the system is, if you have a MH condition involving severe anxiety or depression, or agoraphobia; then you attend a clinic appointment, it can be used as evidence that you aren't as bad as you claim that you are. The reasoning is that you can't be that ill if you can get to a clinic appointment. It's profoundly unfair, and a large part of why I left. Once again; evidence is so important.
Don't assume that the health professional that sees you knows much about your condition. In a working and well-designed system, those with certain conditions would be given appointments with HP's with a specialism in that area. It ain't so. You could get a general or MH nurse, an Occupational Therapist, a Physio or a Paramedic. It's completely random. If you can bring along a health professional of your own, then do. I'd advise anyone against attending by themselves. That's not because I don't trust the DA's; the vast majority are good people. It's just easy to forget things, and people with severe MH problems or learning disabilities/Autism really need an advocate of some sort.
If you're asked to do a set of 12 exercises (it's called the Musculoskeletal exam, or MSK), be sensible! I had people trying to please me by trying to do these despite evident pain; tell the DA why it would be difficult for you to do it. If you cannot do it, just do what you can and explain why. Completing those ridiculous exercises at personal cost, especially pain, will count against you. Don't make stuff up to help your claim (they'll see straight through it, and assume that you're dishonest), but don't put yourself at risk of harm by doing something that you can't. The DA has to take your safety into consideration when assessing what you can and can't do. Once again, evidence is key. If you need aids or adaptations to walk, or need to wear wrist supports etc, then bring/wear them. Help the DA to help you. They normally will.
Talking of assessments, if you report any MH conditions at all, then the DA will be observing you throughout the assessment for a Mental State Examination (MSE). In my opinion, this is even more badly designed that the MSK. A HP, who may or may not have any MH experience at all, will continually assess your mood, behaviour, anxiety etc throughout the assessment. It's completely subjective. If you have a serious MH condition, if you are in pain, if you are distressed or anxious then let it show to the DA. The stiff upper lip is the worst possible approach.
We were told that those 45 minutes were key. If a consultant wrote that you couldn't do something, then you did it in that 45 minute assessment (good day or not) then the weight of evidence would be on the assessment.
My opinion, for what it's worth, is that PIP discriminates against those with learning disabilities or MH conditions. Seriously. It's appalling. If you are turned down, then PLEASE appeal. You'd be surprised how many obtain PIP through appeal; it's often through providing further evidence. Don't give the DWP the chance to deny your rightful claim in the first place; provide that evidence when you first fill in the form
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Please may I suggest any assessment ask for some assistance if you have a mental health support worker or an outreach worker.
They should be with you at any assessment you do. Help you with any form filling in and be in attendance.
Answering any questions you may have.
I have been claiming benefits a long time.
I never say yes for a examination. Nothing in my opinion is more humiliating, embarrassing having someone exam you and have no idea.
It is not necessary. I understand what you are going through. Have compassion.
I have given evidence and what helps in my opinion once again is being honest, open and be truthful.
If you need to explain how you are having problems use some notes. I made some bullets points as I referred to them.
Please can I add one other point if you do not mind. There are positivity stories around the benefit system.
Also in my own history with claiming had good ones bad ones and terrible assessments but tend to be focused on the good ones.
I lost my car on the Motability scheme a year ago but do know there are answers and solutions to be coping. Used taxis and do a lot on line you just deal with what you have and stay strong have courage.
Small steps every day.
Try to stay positive and give yourself some reassurance.
If you need to appeal if the decision is that we as a community are always here to advise and be supportive.
One other thing is if you need some help with your mental health.
Consider mental health charities.
https://www.richmondfellowship.org.uk.
Used this one last time can help and offer floating support, advice on mental health and well being.
Assistance with benefits and other aspects of care and health.
Might not be in all areas sorry to say.
Hope that helps.
Please if you need to talk to any one. Happy to do so ready to listen anytime you want to.
Please take care and keep in touch. Best wishes for a positive outcome.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
I am in a similar position lying and manipulative assessors lyes are magnified by so called administrators who write pure disability discrimination, It is all about their careers and doing what their employers expect, not about understanding disabilities and the issues that living with a disability can cause.
Your only option is get the decision letter and put in for a Mandatory Reconsideration, then if that fails you can then appeal it.
But don't write on the form and or accuse them of lying, that really won't go down well at all.
I know you feel hard done by, but just focus on what you think you should have scored points on and give examples of how your affected functionally.
Good luck.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
1. MR aka mandatory reconsideration. Is what you will have to do when you fail an assessment, once you get the failed decision notice you will have a month to put in for a MR, you can phone the DWP PIP and say you want to do a MR.
That can take up to 10 weeks to complete, then the DWP will have looked at your claim again to see if it can be changed, if not they will send another letter telling you of that decision. Sometimes they will change the decision in your favour, but that's not often.
Just give good answer on the MR form.
3. Assessors and the report and it's full of lies. Again "Don't" even mention the lies it will not be wise? It's hard I know, but hold be in mentioning them.
I hope this you now understand what happens.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
I campaign against them every time. I'm disabled myself and have gone through this process. I don't just let them assessments push me around, I do give them a hard time and I always win. Only ever had one assessment face to face none ever since. My DLA to PIP was done on paperwork enhanced both rates ongoing, as was my last three ESA's.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
Must ask did you send in any evidence with your PIP2 form, if you didn't that's more likely got turned down.
if you did send evidence with your PIP2 form if it was only generalised information and didn't mention anything about how you function on a daily basis, if it was only the diagnosis listed PIP doesn't just accept that, the DWP want to know how you function daily even though having a diagnosis proves you have a disability or health condition(s).
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
I'm off to bed now. Take care as best as you can.
Here is a screenshot that I won for my PIP.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
This activity does not consider the ability to manage clothing, climb stairs or mobilise to the toilet.
Bathing, why do you need help with this? Do you need help to get into a bath? do you use aids to help you do this? If they think aids can reasonably be used, whether you use them or not then they will score you 2 points for needing an aid, rather than needing assistance. If you need assistance then you need to tell them why you need this and why using an aid will not be helpful to you.
Have a read of these links. https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria#daily-living-activities
https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria#applying-the-criteria
As others have said you can ask for a mandatory reconsideration of the decision and to do this successfully you really do familiarise yourself with the information that is available on the links that Poppy has provided.
It helped me to look at it as though I were sitting an exam - so before I wrote anything I made certain that I understood exactly what the question was. Once I'd done this I avoided things that weren't relevant such as getting up and down stairs ('mobility' doesn't cover that), getting dried after a bath (not covered) etc..
Once you know what is involved in each area, go through methodically and give examples of what you can't do, whether you need assistance or aids etc.
Be specific - don't talk in general terms. So when you say that you can't cook be more detailed.
Cooking comes under 'preparing food' - essentially making a meal for one from fresh ingredients. Are you able to peel and chop? Do you need to sit down whilst you do it? Do you forget that you've left something on the stove? If you have then say what happened?
Was it dangerous?
You'll need to go through everything carefully so it will take some time - best to do a little bit each day so that it doesn't become overwhelming.
Finally don't forget that you are NOT on your own - there are plenty of people on this forum who will help you ...
Im paralysed, amongst many other disabilities I have carers that look after me as I'm on my own. When I get good days I do campaigning now and a Labour Member.
I also advise you to read @poppy123456 has also stated above, she also has good knowledge of how the process works.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
Scope
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Please, please don't let it worry you, but I know it will? Forget about the lies it's happened, it wrong agree but you just need to build your case from this without saying she lied, get your family to help you with the forms if you can't manage it.
let the lies and untruths go it will only go against you. Let us know how you get on, good luck.
I created one of the campaign election videos for Labour, and Jeremy Corbyn,
This is a new version of Emeli Sande, Hope "You Are Not Alone
You can see the video here.
https://m.youtube.com/watch?v=P5o8hRHh9IY
I'm so sorry to read about how unfair the assessor was!
Did you appeal the decision?
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I am at the point where I`m awaiting the decision following my f2f on the 3rd Oct.
I see so often that we are advised to ask for a copy of their report. But I cant bear the thought of reading possible lie and then having to wait until the decision comes. I know it would completely do my head in. Like you, I simply cannot believe how these assessors lies are upheld. Why on earth is this allowed to continue? The government must know what`s going on. We teach our children to be honest, yet the highest office gets away with lying. It is totally wrong and goes against everything we were brought up with.
I feel so bad for you and worry that I may get the same treatment, despite needing huge amounts of help to live daily.
My best wishes to you and your family.
You need to prove those descriptors apply to you and doing so will give you the best chance of a decision in your favour.
A poorly presented case can often lead to refusal, which is why you were advised against mentioning those lies.
The MR decision will most likely remain the same but appearing in person at your Tribunal hearing will give you the best chance of a decision in your favour.
Looking back I dealt with this very badly:-
Even if you can prove that the assessor lied it's a hollow victory. You need to show why you should get PIP and 'disproving' the reasons the assessor gave for you not getting it won't achieve this. If the assessor said that you can walk 200 metres and you can show that this is wrong you still haven't evidenced how far you can walk.
It's hard to be positive when you've been treated unfairly but concentrating on negative things (as I found to my cost) isn't the way to go...
I am expecting a bad result but WILL fight it.......come on, we`re all behind you on this chuck xxxx
My PIPs Tribunal hearing was ajourned last week.
The temporal type of Auditory Processing Disorder, having problems processing the gaps between sounds which can include the gaps between words in rapid speech, is the main underlying cognitive cause of dyslexia, which can cause problems when having to fill out forms created by others using new and unfamiliar terminology to make issues difficult to understand by the general population.
I was the first adult in the UK to be clinically diagnosed as having Auditory Processing Disorder back in 2003, at the request of the UK Medical Research Council so that I could set up and help run a support organisation for those diagnosed as having Auditory Processing Disorder by their 5 year Auditory Processing Disorder research program 2004-2009.
Unfortunately we are still having to educate UK audiologists regarding the Four types of Auditory processing Disorder
The best thing you can do when writing the MR is to give 2/3 real life examples.
What i I advise you to do is look at the descriptors and start with activity one preparing food... are you able to prepare and cook a simple meal yourself? If you can’t why can’t you? Do you need an aid? If so why? Then add the examples.
Do be aware that if an aid can reasonably be used, you will score points for this rather than score points for needing assistance. If you need assistance then you must tell them why this is needed and what happened the last time you attempted that activity alone.
Have you read read the link I posted in one of the comments? I would urge you to spend some time to read that link because it will give you a better understanding of the descriptors and what they mean. Having some knowledge definitely helps. There’s a lot of very useful information in that link. It’s very easy to score yourself points if you don’t fully understand it and it’s not always possible to score the points you think you should score.
The only person that knows how your conditions affect you is yourself.
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The first stage of an appeal is a mandatory reconsideration. Ideally this is done within a month of the decision being made. This can be done online where you outline 2-3 times which descriptors you meet and why (using real life examples).
If we can help in any other way then please do let us know.
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Hello there, nice to meet you.
I am so sorry that you are being made to suffer in this way. Many people are being treated the same way, so know that you're not at all alone.
I think what people are saying on this thread is that you need to concentrate on getting your needs and difficulties across, rather than continue to fret about the lies or discrepancies.
Easier said than done, I know. It's absolutely awful when false things are written about you.
If your assessment had been recorded they would have had to ask your permission so it wasn't recorded.
I think the way the recording issue works, is that you request it in writing, they may give permission but you need to have 2 recordings done at the same time. One for them and one for yourself.
If I am wrong about that someone will probably come in here to explain.
If you make a complaint about the lies it will be your word against theirs.
Sorry I don't personally know of anyone who has tried or succeeded with a complaint.
I have read the full post and I really would like to see you press further with a mandatory reconsideration.
If you spend time and energy on complaints you will have little left of yourself for the MR.
Do you have someone who can help you with the MR?
If you can succeed, then you have beaten the assessor in a better way than making complaints.
That's the way I look at it.
I hope my advice is helpful, I really do.
I fully understand and empathise.