PIP, DLA and AA
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Want to give us your opinion? Complete our annual survey.

PIP and Mental Health

pkeith95pkeith95 Member Posts: 16 Connected
edited October 2019 in PIP, DLA and AA
Hi All,

I applied for PIP on the 22nd May 2019, filled out and returned the forms around the 2nd July 2019 and had my F2F assessment on the 9th October 2019 (after a couple of cancellations due to staff sicknesses).  The report made it to the DWP the next morning ;) and I've just requested a copy of that report for my records.

I just wanted to know how peoples experiences have been with claiming PIP for mental health issues, specifically anxiety and depressive disorders?

I suffer with extreme anxiety and depression and have done for over 3 years now, following the breakdown of my career and losing all confidence in life generally.  I struggle to leave the house, engage socially, I don't answer the phone or the door.  Unsolicited mail can drive me into a panic.  I need support to go on any journeys to avoid panic and a huge amount of psychological distress.

My assessment was terrifying but I was so fortunate to have a mental health nurse as my assessor.  She was brilliant and let me talk everything through, let me dry my tears when it became all too much and, she had amazing insight to what I was saying.

I guess my question is, has anyone had a generally positive experience of claiming PIP for mental health issues?  Did you find the assessment report accurately described what you had said?  Did the decision reflect that?  How long after your assessment did you receive a decision?

I realise that these topics are discussed at length on forums but I would really like to create a space for these specific things.

Thank you all so much,

PK

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @pkeith95 and a warm welcome to the community!

    I'm so glad to hear that you had some who was understanding and I hope that helped a little. It is very possible to claim PIP for mental health and there will be people on the forum who have been successful with this. Like everything, there will be people with good and bad experiences.

    I hope your report doesn't take too long to arrive, and this will give you an indicator about what award will be given as they rarely go against this.

    Please do let us know if we can do anything else to help and I hope others share their experiences with you soon. :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • pkeith95pkeith95 Member Posts: 16 Connected
    Hi Chloe,

    Thank you for the welcome :).

    DWP said the report would be with me within 7 days, so not a huge amount of time to wait.

    It was great to have that specific nurse but of course it’s still a terrifying process.  It’s hard to talk about mental health issues as you constantly feel like people simply don’t believe you. 

    Hopefully a a good result will follow and I will definitely share with you all.

    PK
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @pkeith95, I can see why it would be really difficult to talk about. Sometimes saying things out loud can be hard as well. Fingers crossed for a positive result!! 
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • 66Mustang66Mustang Member Posts: 4,531 Disability Gamechanger
    edited October 2019
    I have some similar health issues to you, pkeith95.

    I’m glad you got a good, understanding assessor.

    Sadly I did not have the same experience, mine was friendly enough on the day but in my opinion did not accurately describe my condition. They said I did not show any signs of being nervous or distressed when I was very much so.

    The decision maker also decided I am able to make journeys unaided, when I cannot leave the house without one of my parents! I am currently in the process of appealing. 

    As for how long, it took around 2 months from having the assessment to receiving my decision. 

    I hope you get a good result when you get your decision.
  • pkeith95pkeith95 Member Posts: 16 Connected
    I'm sorry to hear about your experience, I hope your appeal is successful.  I can imagine how it affects your mental health.  Wish you the best of luck.
  • 66Mustang66Mustang Member Posts: 4,531 Disability Gamechanger
    Thanks very much and likewise. :smile:
  • pkeith95pkeith95 Member Posts: 16 Connected
    Hi all,

    I just received a copy of the assessment report from the DWP.  On the whole I am very relieved as they reported everything I said correctly and the assessor recommended Enhanced Rate of Daily Living.  No Mobility, but I am not surprised as, despite overwhelming anxiety at times, I can get about if I am desperate.

    So hopefully the DM at the DWP follows the report and I get the ER DL component.

    Thanks again for your support.

    PK
  • 66Mustang66Mustang Member Posts: 4,531 Disability Gamechanger
    That sounds promising. Well done. Hope the end result is positive and you get what you deserve.
  • Adrian_ScopeAdrian_Scope Posts: 7,917

    Scope community team

    Hi @pkeith95. It's very unusual for the decision maker not to go with the assessment report so hopefully you'll receive the award you're expecting. Let us know how you get on! :)
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • [Deleted User][Deleted User] Posts: 587 Listener
    Hi, glad to hear your assessor seemed to understand.

    My first assessor was great, took both my mental and physical health problems into account, awarded me enhanced for both for 5 years, I had my review assessment in April and I'm STILL waiting 28 weeks later. People say it's rare that the case manager goes against the report but that's exactly what's happened in my case, but I believe it was because there were a lot of discrepancies and contradictions in the report and it really didn't tally with the first report or evidence, the problem is, this is all having a huge impact on my health because of how long it's taking and the fact that my award is due to end in November which means my Son will also lose his carers money. The DWP aren't updating us and when you ask for updates they fob you off! When I ask people for help like Welfare Rights they seem like they can't be bothered and yes I do understand that they are busy but I've really not had a good experience with Welfare Rights from the start.
  • pkeith95pkeith95 Member Posts: 16 Connected
    I’m so sorry to hear that, I really hope they don’t keep you waiting long.  It’s so difficult, i’m not sure they realise just the effect it has on people’s lives.

    Best of luck, I really hope it’s not too long for you. 

    PK
  • pkeith95pkeith95 Member Posts: 16 Connected
    Hi @pkeith95. It's very unusual for the decision maker not to go with the assessment report so hopefully you'll receive the award you're expecting. Let us know how you get on! :)
    Thanks Adrian, hopefully that’s the case :) 
  • CressidaCressida Member Posts: 754 Pioneering
    @pkeith95 I hope you don't have to wait too long! Like others have said they usually go with the assessor's report. That may not give you much comfort during the wait but try and stay positive! I kept checking my bank account and the backpay went in a few days before I received the official notification!

  • pkeith95pkeith95 Member Posts: 16 Connected
    Thank you! I do keep checking it too.  How long did you wait after your assessment? 
  • CressidaCressida Member Posts: 754 Pioneering
    @pkeith95 I will check but I think it was about 8 weeks. From the time the DWP received my application to f2f was really quick! The wait then for the brown envelope seemed to be forever! It doesn't help when the DWP start sending letters saying 'we have all the information we need'. You see the letter and think this is it!!! I'm sure you will be fine but I know it's hard to relax when it's you that's waiting. I had been unwell for years before I claimed and was pushed into it by a work colleague. I wish I had applied sooner but thought as I worked (now partly from home) I wouldn't be entitled to it. Still better late than never! Fingers crossed for you. 
  • pkeith95pkeith95 Member Posts: 16 Connected
    Good on you for putting yourself through it.  It is a horrid experience but I’m glad i’ve done it.  It’s similar for me too, been ill for a long time but didn’t know I could claim.  Let’s hope it’s not too long :) 
  • [Deleted User][Deleted User] Posts: 587 Listener
    I've not heard anything back yet but I do know they dropped my award to standard when nothing has actually changed, it's beyond me why they bothered my GP for information if they wasn't going to pay attention to it, pretty disgusted to be honest. I found out because I had no money in the bank this morning, I decided to check my council tax account online and it's got the information in there.. Looks like I'll be doing an MR and maybe putting a complaint in when I get the letter.
  • pkeith95pkeith95 Member Posts: 16 Connected
    Was that after an assessment suggested Enhaced rate?  I’m so sorry to hear that.  I hope you’re able to fight through and get the award you need.

    Does anyone know, if the DWP needs to phone you, do they use a recognised national number? I keep getting a local number call but they don’t leave a message and my anxiety is such that I don’t answer the phone unless I know the a caller, or they leave a message.  Would a local DWP office have a national number still? 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I believe DWP either use a withheld number or an 0800 number.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • pkeith95pkeith95 Member Posts: 16 Connected
    Thank you @poppy123456 !

    That’s made me feel so much better :) 
  • [Deleted User][Deleted User] Posts: 587 Listener
    @pkeith95 no, I was originally on enhanced and this recent assessor obviously doesn't seem to understand mental health because he removed points in anything indicating that I have MH problems despite there being evidence, the assessor has made it about my physical health and suggested standard however, like I said before, the case manager was disputing things and my GP was asked for info which has obviously been ignored *shrugs*. Time to start working on an MR I think lol.

    Anyway, take care :)
  • pkeith95pkeith95 Member Posts: 16 Connected
    I’m so sorry to read this, it’s devastating really because still people do not understand mental health issues fully.  I feel incredibly lucky to have had a mental health nurse assess me.  I dread to think what would have happened if not.

    Keep fighting, and take care :)
  • [Deleted User][Deleted User] Posts: 587 Listener
    Thank you very much and thanks for understanding.

  • pkeith95pkeith95 Member Posts: 16 Connected
    Quick Update:

    2 weeks ago today I had my PIP assessment and today I received my first payment.

    I’m very pleased with the process, I’m happy with the level they assessed me at and the speed with which I was given my decision.  Hopefully the letter arrives today too.

    I really wanted to show some positive experiences with PIP because when I was going through the process I was terrified due to all the negative experience that people have had.  It made me feel better when I saw that someone, anyone, had had a positive experience, especially with Mental Health.

    Keep fighting on everyone :) 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Brilliant news! I love seeing positive posts because exactly like i always tell others, we mostly only hear the bad stories.

    Also, if you claim any other benefits, depending on your PIP award and other circumstances you maybe entitled to other benefits.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • pkeith95pkeith95 Member Posts: 16 Connected
    Thanks @poppy123456

    I’ve been advised the ESA is something I should be looking at but I am not sure that PIP will make a difference to the New Style ESA as it’d probably be contributory.

    I’m glad to have been able to show a positive experience.  Hopefully it’ll make a difference to someone :) 

    Oh and of course, a HUGE thank you to everyone who supported me in this thread @poppy123456 @Chloe_Scope @Adrian_Scope

    Wonderful people x
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    That's amazing news @pkeith95!! Thank you for sharing this with us! You are most welcome. If you need any support with ESA (or anything else) then please do let us know. :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Adrian_ScopeAdrian_Scope Posts: 7,917

    Scope community team

    I'm really happy for you @pkeith95 and I'm glad the process has been relatively smooth for you. Thank you for sharing. To echo Poppy — it's really important people share their positive stories too.

    New Style ESA is contribution-based, so you'd probably be looking at applying for Universal Credit and LCW/LCWRA, but it of course depends on what else you're claiming and your personal situation as to whether you'd be eligible.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    New style ESA is based on your NI contributions in the previous 2 tax years from working and you're right, a PIP claim won't make any difference to this. You also need a fit note to be able to claim this.

    Universal Credit is a means tested benefit and claiming that will depend on your circumstances, household income and savings. A fit note will also be needed to claim limited capability for work but a PIP award won't affect this, sadly.

    If you're claiming housing benefit then you should let your local council know when you receive your award letter as it may affect it in a good way.

    Anything else will be things like road tax but it will depend whether you receive the mobility part and what level. Blue badge if you receive mobility but again, what level.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • pkeith95pkeith95 Member Posts: 16 Connected
    You guys are awesome, thank you so much for the advise.  I’ll see how I get on :) 
  • pkeith95pkeith95 Member Posts: 16 Connected
    Wow, got my decision letter through today, they’ve awarded me
    PIP til 2022! I’m flabbergasted as I thought it would only be a year and a half at most. 

    This is a huge weight off my shoulders and mind.  Brilliant news
  • Adrian_ScopeAdrian_Scope Posts: 7,917

    Scope community team

    That's brilliant news @pkeith95, I'm really pleased for you!
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    That's great news @pkeith95!! :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @pkeith95   Congratulations wish you well.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
Sign in or join us to comment.