Permitted work and appeal
Hi everyone- this is my first post. I am on ESA and due to have an appeal - not linked with proving disability, but because the DWP suddenly decided that my previously allowed expenses were suddenly not allowed. It makes no sense and I have my accountant, local councillors, my MP and my doctors all agreeing that it is ridiculous (I am self employed and work around 3-4 hours per week as and when I can leave the house). Their unfair calculations pushes me over the permitted work limit of £131.50pw by £20 pw. I am contesting it, but my question is- what if I lose my appeal? I get severe disability premium, so I cannot apply for Universal Credit. I don't do enough hours to get working tax credit. And I can't get Job Seekers as I am so severely disabled. I get the top rates of PIP and was in the support group. You'd think they would have better things to do than to hound me (us). I do what is asked of me and then they change the rules without telling me. Anyway, if I do not succeed with the appeal, what do I do then? I have had no ESA since the start of August, and they won't give me any in the interim as they say I am earning more than £131.50 pw. What should I do? Also if I do not win, they may try and backdate it to April 2019 and make me pay back the ESA I received from April-August. I've also just been told that the appeal will take A YEAR to happen. I can't survive like this for a year when I can barely leave the house. My Dad died 2 days ago and I really don't think I can take much more. Thanks for any advice.
- 50.2K All Categories
- 9.9K Start here and say hello!
- 4.3K Coffee lounge
- 3.9K Disability rights and campaigning
- 1.4K Research and opportunities to get involved in
- 137 Community updates
- 11.6K Talk about your situation
- 1.7K Children, parents, and families
- 682 Work and employment
- 538 Education
- 1K Housing, transport, and independent living
- 951 Aids, adaptations, and equipment
- 255 Dating, sex, and relationships
- 252 Exercise and accessible facilities
- 19.8K Talk about money
- 1.8K Benefits and financial support
- 4.3K Employment and Support Allowance (ESA)
- 11.6K PIP, DLA, and AA
- 2.1K Universal Credit (UC)
- 3.7K Talk about your impairment
- 1.2K Cerebral palsy
- 611 Chronic pain and pain management
- 667 Rare, invisible, and undiagnosed conditions
- 723 Autism and neurodiversity
- 870 Mental health and wellbeing
- 290 Sensory impairments
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.