social worker/care plan
Options
pollyanna1052
Community member Posts: 2,032 Disability Gamechanger
On Friday next, I have a social worker coming to see me and hubby.
Just to briefly give you a run down of how my/our lives are;
I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.
I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.
Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.
So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.
I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.
WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....
I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
Just to briefly give you a run down of how my/our lives are;
I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.
I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.
Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.
So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.
I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.
WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....
I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
Comments
-
I'm sorry to hear of you and your husband's health struggles @pollyanna1052. Have no words of advice, but just wanted to say that I am thinking of you. You are a great member of this Community and I enjoy reading your posts as you give so much support to others. Life just seems so unfair at times, but I hope things improve for you both soon and I wish you well for your Social Worker visit. Let us know how it goes. All the best. xWinner of the Scope New Volunteer Award 2019.
-
-
pollyanna1052 said:On Friday next, I have a social worker coming to see me and hubby.
Just to briefly give you a run down of how my/our lives are;
I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.
I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.
Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.
So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.
I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.
WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....
I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
-
The Social Worker`s visit went well yesterday. She was very interested and did a good in depth assessment. She believes we are in urgent need of more help and made lots of good suggestions and is referring me to an OT for sleeping systems.
She`s coming again next week to do hubby`s own assessment. So yeh, it`s looking good.
Thank you for your kind words all xx
-
Glad to hear @pollyanna1052. Hope you are well. xWinner of the Scope New Volunteer Award 2019.
-
Great news @pollyanna1052. Here's hoping your hubby's assessment goes just as well.Community Manager
Scope
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions