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social worker/care plan

On Friday next, I have a social worker coming to see me and hubby.
Just to briefly give you a run down of how my/our lives are;
I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.
I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.
Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.
So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.
I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.
WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....
I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
Just to briefly give you a run down of how my/our lives are;
I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.
I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.
Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.
So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.
I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.
WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....
I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
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She`s coming again next week to do hubby`s own assessment. So yeh, it`s looking good.
Thank you for your kind words all xx
Scope
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