We want to hear from you: please tell us about your experience of the online community.
pollyanna1052 said: On Friday next, I have a social worker coming to see me and hubby.Just to briefly give you a run down of how my/our lives are;I`ve been disabled for 20 years. Had to retire on ill health grounds at 47....yeh, I`m 67 now.I`ve been mis-diagnosed twice and was discharged from local neuro dept 2 years ago, with a big fat ? on my forehead! I`m a full time wheelchair user and need hoisting for every transfer.Hubby was my sole carer for 11 years. I knew it was hard on him, so got outside carers in 8 years ago. It helped....I currently have 28 hours, plus 2 sleepovers a week care.So hubby looks after me for 120 hours a week. I am dependent on others for all personal care, cooking, housework, and taking out.I`m asking for more help. We are worn out. Hubby is 71 now and feeling it, due to having both osteo and rheumatoid arthritis. Our life revolves round sorting me out! I feel such a burden and hate myself for doing this to him. Retirement was never meant to be like this. The highlight of my day is having a laugh with my carers.WE had such plans, like running a caravan park in Gloucester...no chance! Like touring in our campervan...no chance....I have had to start paying £57.22 a week towards my care and I`m awaiting the decision re PIP. Where did it all go wrong?
The value must be greater than or equal to 1.
Get more out of your online community by signing in or registering
