Hi, my name is karenstar!

Options
karenstar
karenstar Online Community Member Posts: 2 Listener
in Start here and say hello!
Hello I am just karen but that name was taken lol.i am a manifesting carrier of DMD I am 57

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 17,071 Championing
    Hi @karenstar - Welcome to the community, Karen. Might I ask if you're referring to Duchenne Muscular Dystrophy?
    I also have a genetic disorder which is usually transmitted in 50% of pregnancies. All of my children, & all 3 grandchildren have inherited it (Ehlers-Danlos Syndrome)!
    Thank you for joining. Please have a look around, perhaps using the 'All groups' link on the right, & join in with any discussion.
    Please, if you have any questions, just say, as hopefully you'll get some feedback/advice. Also chat or vent here any time!
  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    Hello  @karenstar   pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide, advise members of our community.

    We are here to support and help you please ask any questions, have  a look around our website.

    Every one is friendly.  You have met my friend @chiarieds .

    I hope this might help you this organisation, has information, support.

    https://www.musculardystrophy.org.uk.

    Helpline 020 7803 4800

    Please I hope you enjoy your time with the community.

    Please take care.

    @thespiceman
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @karenstar

    Welcome to our online community/family ?

    I am one off a team of Community Champion’s here at Scope.

    We are all here to help & assist any new members.

    Please come back to me if you need any further help??  

    @steve51
  • Connie00
    Connie00 Online Community Member Posts: 249 Empowering

    Hello @karenstar


    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. Thank you for reaching out to us,  and thank you for sharing, it must be very difficult for you with your condition, I don't know to much about it except that you carry the gene that can cause DMD in your children, is that correct? I'm hoping that we have others on here that may be able to help or advise you.

    We are always here to lend support, help, and advise where we can,

    If we can be of any assistance to you please don’t hesitate to contact us

    @connie00:)

     


  • gaz1960
    gaz1960 Online Community Member Posts: 292 Empowering
    Hi Karen,welcome to the site. :) 
  • Adrian_Scope
    Adrian_Scope Posts: 11,754 Online Community Programme Lead
    Hi @karenstar and welcome to the community. :smile:

Categories