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Hi, my name is karenstar!

karenstarkarenstar Member Posts: 2 Listener
Hello I am just karen but that name was taken lol.i am a manifesting carrier of DMD I am 57

Replies

  • chiariedschiarieds Community champion Posts: 6,897 Disability Gamechanger
    Hi @karenstar - Welcome to the community, Karen. Might I ask if you're referring to Duchenne Muscular Dystrophy?
    I also have a genetic disorder which is usually transmitted in 50% of pregnancies. All of my children, & all 3 grandchildren have inherited it (Ehlers-Danlos Syndrome)!
    Thank you for joining. Please have a look around, perhaps using the 'All groups' link on the right, & join in with any discussion.
    Please, if you have any questions, just say, as hopefully you'll get some feedback/advice. Also chat or vent here any time!
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello  @karenstar   pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide, advise members of our community.

    We are here to support and help you please ask any questions, have  a look around our website.

    Every one is friendly.  You have met my friend @chiarieds .

    I hope this might help you this organisation, has information, support.

    https://www.musculardystrophy.org.uk.

    Helpline 020 7803 4800

    Please I hope you enjoy your time with the community.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @karenstar

    Welcome to our online community/family 😃

    I am one off a team of Community Champion’s here at Scope.

    We are all here to help & assist any new members.

    Please come back to me if you need any further help??  

    @steve51
  • Connie00Connie00 Member Posts: 255 Pioneering

    Hello @karenstar


    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. Thank you for reaching out to us,  and thank you for sharing, it must be very difficult for you with your condition, I don't know to much about it except that you carry the gene that can cause DMD in your children, is that correct? I'm hoping that we have others on here that may be able to help or advise you.

    We are always here to lend support, help, and advise where we can,

    If we can be of any assistance to you please don’t hesitate to contact us

    @connie00:)

     


  • gaz1960gaz1960 Member Posts: 134 Pioneering
    Hi Karen,welcome to the site. :) 
  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,951 Scope community team
    Hi @karenstar and welcome to the community. :smile:
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
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