Hi, my name is karenstar! — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is karenstar!

karenstar
karenstar Member Posts: 2 Listener
Hello I am just karen but that name was taken lol.i am a manifesting carrier of DMD I am 57

Comments

  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,600 Disability Gamechanger
    Hi @karenstar - Welcome to the community, Karen. Might I ask if you're referring to Duchenne Muscular Dystrophy?
    I also have a genetic disorder which is usually transmitted in 50% of pregnancies. All of my children, & all 3 grandchildren have inherited it (Ehlers-Danlos Syndrome)!
    Thank you for joining. Please have a look around, perhaps using the 'All groups' link on the right, & join in with any discussion.
    Please, if you have any questions, just say, as hopefully you'll get some feedback/advice. Also chat or vent here any time!
  • thespiceman
    thespiceman Member Posts: 6,390 Disability Gamechanger
    Hello  @karenstar   pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide, advise members of our community.

    We are here to support and help you please ask any questions, have  a look around our website.

    Every one is friendly.  You have met my friend @chiarieds .

    I hope this might help you this organisation, has information, support.

    https://www.musculardystrophy.org.uk.

    Helpline 020 7803 4800

    Please I hope you enjoy your time with the community.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @karenstar

    Welcome to our online community/family 😃

    I am one off a team of Community Champion’s here at Scope.

    We are all here to help & assist any new members.

    Please come back to me if you need any further help??  

    @steve51
  • Connie00
    Connie00 Member Posts: 252 Pioneering

    Hello @karenstar


    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. Thank you for reaching out to us,  and thank you for sharing, it must be very difficult for you with your condition, I don't know to much about it except that you carry the gene that can cause DMD in your children, is that correct? I'm hoping that we have others on here that may be able to help or advise you.

    We are always here to lend support, help, and advise where we can,

    If we can be of any assistance to you please don’t hesitate to contact us

    @connie00:)

     


  • gaz1960
    gaz1960 Member Posts: 242 Pioneering
    Hi Karen,welcome to the site. :) 
  • Adrian_Scope
    Adrian_Scope Posts: 8,091

    Scope community team

    Hi @karenstar and welcome to the community. :smile:
    Community Manager
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.