Hi, my name is icarus! — Scope | Disability forum
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Hi, my name is icarus!

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icarus
icarus Community member Posts: 31 Courageous
in Start here and say hello!
i lost both legs in an accident about 10 years ago im just over 60 can still ride a tricycle climb ladders and take a canoe out on the sea but have a lot of pains i never had before had to make my own prosthetic swimming fins and disability trikes and  scooter just chopping abicycle up to make a step through frame
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  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
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    Welcome to the community @icarus! Sounds like you can get quite creative with bits and pieces! What's been the best thing you've created from old parts so far?
    Disability Gamechanger - 2019
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  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
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    Hi @icarus - Welcome to the community & thank you for joining. It's a pleasure to read your (mainly) very positive post....you seem to have adapted & overcome so much, & also seem mechanically minded which has helped!
    I'm sorry to read you're also now in pain. Perhaps see your GP, or if you see any specialists, I would think this new pain worth mentioning, to see if there's anything they can suggest that might help you.

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  • Cressida
    Cressida Community member Posts: 1,016 Pioneering
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    @icarus welcome to this lovely forum. Your post was like a breath of fresh air. Very interesting to read. 
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  • Adrian_Scope
    Adrian_Scope Posts: 10,938 Scope online community team
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    Hi @icarus and welcome. It sounds like you’re pretty handy!
    Have you spoken to anyone about the pain you’ve been experiencing?
    Community Manager
    Scope
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  • icarus
    icarus Community member Posts: 31 Courageous
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    yes went to a pain management clinic many years ago but all the effective medications cause drowsiness a tens machine works for a couple of hours but recently lots of hip pain caused by change in walking position dumping weight slowly by a healthier diet at the moment dont want to be sleepy during the day last xray showed worn hip joints   
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  • icarus
    icarus Community member Posts: 31 Courageous
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    best so far has been my 20mph tricycle and a mobility scooter with big quad tyres on looking fwd to trying it on the beach 
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  • icarus
    icarus Community member Posts: 31 Courageous
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    trouble is i tend to be a junk collector because i look at old machinery and think i will keep that it
    will be useful
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  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
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    Hi @icarus

    Welcome to our online community/family.

    You sound like a good handyman & it’s great to hear ? that you keep yourself very busy.

    Yes “Pain” can become very very difficult for us.

    I am also trying a “Tens Machine” for my 24/7 Chronic Pain.

    @steve51

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  • icarus
    icarus Community member Posts: 31 Courageous
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    pain is exhausting and slows us down  I used to work in electronics industry was bored so left my job and ate my p45 not as much money but a much better lifestyle . my accident resulted in an interest in mobility equipment i troll the internet for dead equipment to repair and use myself selling it offwhen i findsomething better
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  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
    edited January 2020
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    @icarus - I appreciate that some meds cause sedation; I've been there too, & came off those that affected me that way. You're definitely helping yourself by looking at weight loss.....very wise, as too much weight puts additional stress on your joints. But the pain you have 'might' be less with some meds that don't cause sedation, so perhaps worth discussing such options with your GP.
    Your mindset is great; but hope if there was a way to get your pain under control it would better help you.
    Have been like you; keep something as it might come in handy in the future, but you can't keep everything!
    As @Cressida said, you're posts are, 'like a breath of fresh air,' & 'interesting,' so please keep in touch.
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  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
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    Hi @icarus

    Yes “Pain” is very very tiring I have to take things easy “hour by hour, minute by minute”

    Yes we need to keep active during the day.

    Mind you we need to be careful not to over do things.

    I don’t know about eating my “P45” though!!!!!!!

    “Keep up the good work”

    @steve51
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