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Just diagnosed with FND
Hi, my name's Jason, I've just gone through a year of testing, MRI's showing some white matter brain damage, and a shed load of tests including lumbar puncture. Prior to the results of the lumbar puncture, because I've been off work on long term sick, I was diagnosed with MS by an occupational health doctor, just by physical examination and physical response tests but now (last week) my neurologist's come back with the results of the lumbar puncture and said it's definitely not MS but FND. Having looked at the symptoms of FND it does fit, I have fatigue, dizziness, gait disturbance, painful joints (particularly knees), I get quite a lot of dissociation although never had a seizure yet, just prolonged dreamlike, "out of body," feelings, spasms, jerks, and a constant feeling of being at sea, as if I was very drunk. My question is, is it normal for a neurologist to diagnose you with FND and then just say, "So you don't need to see me again." It feels like she's just washed her hands of it. To be fair, apart from with my G.P. I've had to really fight to get any testing done. For the first time in my life I feel really let down by certain people in the NHS.