Hi, my name is JDContreras and I'm researching people's fear and struggles.

JDContreras
JDContreras Community Member Posts: 5 Listener
edited September 2020 in Actions and opportunities

Hi I am Juan <moderator removed - personal details>  a former patient of Great Ormond Street Hospital and have a neurological condition.  I have Glutaric Aciduria type 1 and Dystonia.  I have suffered a lot over the years with fear and speaking out which is why I want to give a voice to those that feel vulnerable and those that feel they cannot speak up due to fear.   I was wondering if you could do the questionnaire that I have produced please so that I can get a feel for how many people have these concerns. 

Here is a link to <moderator removed - personal marketing>

Thank you 

Juan <moderator removed - personal details>


Comments

  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,710 Championing
    edited September 2020
    Hi @JDContreras and welcome to our online community!

    Could you please email the team on community@scope.org.uk with more details about your research and how you will handle the data you obtain?  We just need to make sure it's safe for our members before advertisement.

    Also, I've moved your post to our Events, research and opportunities board so it's in the appropriate place for people to spot it.

    Many thanks.
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,710 Championing

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  • JDContreras
    JDContreras Community Member Posts: 5 Listener
    Hi @Cher_Scope I have emailed the address you gave me.  Thank you so much for letting me know 
  • JDContreras
    JDContreras Community Member Posts: 5 Listener
    edited September 2020
    JDContreras said:

    Hi I am Juan <moderator removed - personal details>  a former patient of Great Ormond Street Hospital and have a neurological condition.  I have Glutaric Aciduria type 1 and Dystonia.  I have suffered a lot over the years with fear and speaking out which is why I want to give a voice to those that feel vulnerable and those that feel they cannot speak up due to fear.   I was wondering if you could do the questionnaire that I have produced please so that I can get a feel for how many people have these concerns. 

    Here is a link to <moderator removed - personal marketing>

    Thank you 

    Juan <moderator removed - personal details>


    The Email Address collected is just to see if you happy to be contacted in future and interested in buying my series of books that will be released in the near future-  if not please write N/A 

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